Similar organisations to Coalition Duchenne
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Hospitals and Primary Medical Care Facilities
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136.
Center for Medical Technology Policy
Center for Medical Technology Policy Home of #GPC (Green Park Collaborative), a multi-stakeholder forum developing #CoreOutcomeSets for clinical trial design.
423
Baltimore
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Birth Defects, Genetic Diseases
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137.
Hoppys Hope To End Huntingtons Disease
RAISE AWARENESS AND PROVIDE FINANCIAL SUPPORT TO ORGANIZATIONS DEDICATED TO FINDING TREATMENTS, AND ULTIMATELY, A CURE FOR HUNTINGTON'S DISEASE.
NEWTOWN SQUARE
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Fund Raising and/or Fund Distribution
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138.
24 Hours for Hank Inc
RAISING FUNDS FOR MEDICAL RESEARCH FOR DISEASE CYSTINOSIS 24 hours for Hank Thank you for supporting Cystinosis Research.
Sandpoint
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Birth Defects, Genetic Diseases
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139.
Pku Nowrthwest Alliance
The PKU Northwest is a non-profit 501c(3) that organizes annual events for the PKU in the PNW.
673
Seattle
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Patient Services�Entertainment, Recreation
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140.
Mtm-Cnm Family Connection Inc
MTM-CNM Family Connection is a 501c3 that exists to connect those with Myotubular Myopathy & Centronuclear Myopathy to resources, research, and relationships.
1228
Methuen
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Specifically Named Diseases
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141.
Inspire Hope Foundation for Urea Cycle Disorders Inc
We are excited to introduce the Inspire Hope Foundation for Urea Cycle Disorders, Inc.
290
Braintree
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Professional Societies & Associations
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142.
Pediatric Pulmonary Hypertension Network Inc
To improve the health, quality of care and outcomes of children with pulmonary hypertension by enhancing collaborations amoung centers, in order to develop and apply novel strategies for early recognition and initiation of treament to reverse, prevent or slow the progression of the disease.
CINCINNATI
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Mental Health Disorders
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143.
Metabolic Collective
Metabolic Collective Together were making metabolic therapies accessible to all.
Evanston
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Fund Raising and/or Fund Distribution
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144.
Alexander's Way Research Fund Inc
We promote the development of a treatment or cure for the rare genetic disease known as myofibrillar myopathy 6, (MFM6).
Sheffield