• Biological, Life Science Research (includes Marine Biology, Physiology, Biochemistry, Genetics, Biotechnology, etc.)

• 136.

HHV-6 Foundation

THE HHV-6 FOUNDATION IS A NON-PROFIT ENTITY FOUNDED TO ENCOURAGE SCIENTIFIC EXCHANGE BETWEEN SCIENTISTS AND TO PROVIDE PILOT GRANTS FOR PROMISING SCIENTIFIC AND CLINICAL RESEARCH THE FIRST PRIORITY OF THE FOUNDATION IS TO PROVIDE INFORMATION AND REAGENTS TO INVESTIGATORS WHO ARE INTERESTED IN STUDYING HHV-6 WE MAINTAIN A REPOSITORY OF REAGENTS INCLU DING MONOCLONAL ANTIBODIES, COSMIDS, HYBRIDOMAS, CELL LINES AND VIRAL LYSATES THAT ARE DONATED BY INVESTIGATORS AROUND THE WORLD 12th International Conference on HHV6 7 Announced The 12th International Conference on HHV6 7 will convene in Japan at the Himeji Culture and Convention Center in March 2025.

• Birth Defects, Genetic Diseases Research

• 137.

Cure CMD

Cure CMD’s mission is to advance research toward treatments for congenital muscular dystrophies and empower those living with CMD.

• Education N.E.C.

• 138.

Spinal Muscular Atrophy Foundation

The mission of the Spinal Muscular Atrophy Foundation is to accelerate the development of a treatment for SMA, the number one genetic killer of infants and toddlers.

• Birth Defects, Genetic Diseases

• 139.

Cystic Fibrosis Foundation

Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

• Alliance/Advocacy Organizations

• 140.

Rare Melanin Inc

Amplifying Black Experiences in Rare Disease: Your Voice, Our Mission | WE’RE ON A X HIATUS, COME FOLLOW US ON TIKTOK, INSTAGRAM AND THREADS Health is more than absence of disease it is about economics education environment empowerment and community.

CMT Research Foundation Inc

The CMT Research Foundation has one mission: Deliver treatments and cures for #CMT.

• Specifically Named Diseases

• 142.

Project CASK

An innovative rare disease non-profit driving breakthroughs in treatments and a cure for CASK gene disorders.

CT HEZEKIAH BEARDSLEY CHAPTER OF

Hezekiah Beardsley Connecticut Chapter of the American Academy of Pediatrics Committed to CT Children The Connecticut Chapter of the American Academy of Pediatrics has over 600 active members committed to improving the health and safety of Connecticuts children and supporting those who provide them care.

• Specifically Named Diseases

• 144.

Raiden Science Foundation

Our Mission: Harness the power of community to develop cures for rare diseases, starting with UBA5 disorder Our Vision: Make the impossible possible for Rare* Home About Research Engage Contact Us RAIDEN SCIENCE FOUNDATION Creating more than hope giving kids suffering from UBA5 Disorder a fighting chance.