• Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

• 136.

LYMPHATIC MALFORMATION INSTITUTE

TO IDENTIFY, ORGANIZE AND FUND RESEARCH AND STUDIES TO ADVANCE THE UNDERSTANDING OF THE HUMAN LYMPHATIC SYSTEM AND ITS MALFORMATIONS LMI Our Impact Research Funding To Date 8000000 in research grants Research Publications 20 publications resulting from 45 funded projects and presentations conducted by 36 investigators Research Network 40 investigatorsover 10 countries represented Complex Lymphatic Anomaly CLA is an umbrella term encompassing four overlapping but distinct rare diseases of the lymphatic system Gorham Stout Disease GSD Generalized Lymphatic Anomaly GLA Kaposiform Lymphangiomatosis KLA and Central Conducting Lymphatic Anomaly CCLA.

• Brain Disorders

• 137.

Brain Matters Inc

Dir. /Fndr. of Brain Matters, Inc, a non-profit created 2 promote brain tumor awareness-I'm a brain tumor survivor & Life Coach who walkd 250mi.

• Private Operating Foundations

• 138.

CERN Foundation (Collaborative Ependymoma Research Network)

Committed to improving the care and outcome of people with ependymoma through community support and research efforts.

HSAN1E Society

Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

Leah Still Foundation, Inc.

Our mission is based on Leah’s family’s journey with childhood cancer.

• Cancer

• 141.

Testicular Cancer Commons

Senior testis cancer doc. Founder testicular cancer commons, PI S1823, mentor of youngsters, father of farmers.

DDC CLINIC FOR SPECIAL NEEDS CHILDREN

DDC Clinic is a non-profit primary care, education, and research facility.

• Alliance/Advocacy Organizations

• 143.

Advocates for Universal Dpd-Dpyd Testing

Advocating for pre-testing for DPD Deficiency prior to treatment with fluorouracil-based chemotherapy: 5-FU or Xeloda(capecitabine) to improve the standard of care for cancer patients and save lives.

• Digestive Diseases, Disorders

• 144.

Colon Screening For Life Inc

Interested in volunteering on race day.