• Alliance/Advocacy Organizations

• 136.

CONGENITAL HYPERINSULINISM INTERNATIONAL

Improving the lives of babies, children, and adults with hyperinsulinism (HI) by supporting HI families, research, and awareness to prevent brain damage & death CHI is dedicated to improving the lives of people living with Congenital Hyperinsulinism.

Alport Syndrome Foundation Inc

Improving patient lives through education, empowerment, advocacy, and research with a vision to conquer #Alportsyndrome.

InnerCity Weightlifting Inc

InnerCity Weightlifting (ICW) is a Boston-based non-profit organization dedicated to inspiring hope and providing a path to success for the area’s most at-risk youth.

• Neurology, Neuroscience

• 139.

Down With Dystonia

Our Mission Down with Dystonia strives to support, educate, and empower people living with dystonia and their families while raising awareness about this third most common movement disorder.

• Research Institutes and/or Public Policy Analysis

• 140.

Riaan Research Initiative Inc

501(c)(3) non-profit organization hunting for a cure for rare and life-limiting genetic diseases that hurt children, starting with Cockayne syndrome.

• Fund Raising and/or Fund Distribution

• 141.

Kindness Over Muscular Dystrophy Inc

Help us save our son Conner's life by raising money to cure Duchenne Muscular Dystrophy.

• Fund Raising and/or Fund Distribution

• 142.

Curears A NJ Nonprofit Corporation

Our mission is to spread awareness, connect and provide support to affected families and fund research for the ultra-rare mtARS genes.

• Other Recreation, Sports, or Leisure Activities N.E.C.

• 143.

House of Champions Boxing and Fitness Club Inc

Provide team-oriented boxing and fitness training and science-backed philosophy to support mental & physical awareness to build individual growth in a safe and fully equipped community space and boxing gym for fitness and recreation for at-risk youth and adults.

• Birth Defects, Genetic Diseases

• 144.

DESSH

Join the DeSantoShinawi SyndromePATIENT REGISTRYpowered by About Us DESSH Syndrome News Events Get Involved Legal and Privacy More DESSH is short forDeSantoShinawi Syndrome.