Foundation for Angelman Syndrome Therapeutics

FAST is the premier patient advocacy organization working to cure Angelman syndrome.

• Fund Raising and/or Fund Distribution

• 128.

Ellie White Foundation for Rare Genetic Disorders Inc

We will not give up until a cure for Wolfram syndrome is found for Ellie and the children suffering from this disorder.

• Nerve, Muscle, and Bone Research

• 129.

Alex Rezkalla Foundation

A non-profit organization raising funds to support research for Duchenne Muscular Dystrophy Our primary purpose is to increase public awareness of Duchenne muscular dystrophy through advocacy and fund scientific research aimed at treating those living with Duchenne muscular dystrophy.

Prader Willi Utah Association Inc

The mission of the Utah Prader-Willi Syndrome Association is to enhance the lives of individuals and families affected by Prader-Willi syndrome.

• Fund Raising and/or Fund Distribution

• 131.

Arid1B Research Foundation

Accelerating the development of disease-modifying treatments for #ARID1B-RD (haploinsufficiency) - the most frequently mutated gene in de novo NDDs (ASD, ID).

Ptsd-Aced Foundation Inc

Increase awareness and detection of Post Traumatic Stress Disorder (PTSD) and Adverse Childhood Experiences (ACEs).

• Alliance/Advocacy Organizations

• 133.

Jansen De Vries Syndrome Foundation

The Jansen de Vries Syndrome (JdVS) Foundation is a nonprofit, tax-exempt organization as defined in section 501(c)(3) of the Internal Revenue Code and, as such, contributions to JdVS Foundation are tax-deductible.

NEUROFIT NETWORKS INC DBA PARKINSON

We are focusing on those with Parkinson's & need to streamline our energies.

EHLERS-DANLOS SOCIETY

Advancing and accelerating research and education in Ehlers-Danlos syndromes and HSD.