• Alliance/Advocacy Organizations

• 1234.

Peptide Therapeutics Foundation

THE MISSION OF PEPTIDE THERAPEUTICS FOUNDATION IS TO PROVIDE AND PROMOTE PUBLIC AND CHARITABLE EDUCATIONAL AND INFORMATION PROGRAMS, MATERIALS, RESEARCH AND DISCUSSION IN THE MEDICAL SCIENTIFIC FIELD OF PEPTIDE SCIENCE AND TECHNOLOGY.

• Birth Defects, Genetic Diseases

• 1235.

Sickle Cell Foundation of Orange County

Sickle Cell DIsease Our mission and goal is simple; we will educate, empower, and equip youth and young adults with the authority and power to overcome the challenges of Sickle Cell Disease and is dedicated to educating, parents, teachers, and family members to help raise awareness to this disease and how it is important to take control of the challenges that come with having Sickle Cell or knowing someone that is affected by the Disease.

Kamie K Preston Hereditary Cancer Foundation

Provides Education, Support, Awareness for Hereditary Cancer Genetic Testing.

Neurocognitive Research Institute

The NCRI is a nonprofit organization dedicated to improving health and well-being for patients with neurological diseases.

Move for Miles Childhood Cancer Foundation Inc

Your Play is Powerful. We believe we can harness the power of play to raise funds for childhood cancer research.

Mississippi Metabolics Foundation

Hi, I am Shannah, mom to Emmalyn, who has a rare genetic metabolic disorder, Glutaric Aciduria/Acidemia Type 1.

• Specifically Named Diseases Research

• 1240.

Andreas Foundation for Neonatal Encephalopathy

The Andreas Foundation is dedicated to advancing knowledge, providing support, and fostering hope for families affected by neonatal encephalopathy and pregnancy and infant loss.

• Birth Defects, Genetic Diseases

• 1241.

BPAN WARRIORS

Community resources, research and CONNECTION for BPAN Warrior families (WDR45, NBIA, Rare Disease, Parkinsons, Dementia, Epilepsy, Neurodegeneration, Genetics) BPAN Warriors is a growing international community of individuals who have loved ones directly affec BPAN WARRIORS CONNECT COLLABORATE CURE HOME RESEARCH PATIENT RESOURCES OUR TRIBE OUR PARTNERS DONATE RARE POV BLOG More 414 909BPAN RAREX unveils plan to radically change data collection and sharing to accelerate advances for patients in rare disease How One Rare Disease Advocate Learned to Look Across Diseases Study Makes Economic Case for Benefits of Data Sharing to Improve Diagnosis and Treatment of Rare Disease Patients Harnessing Machine Learning to Improve Diagnosis and Treatment of Rare Diseases Making Collaboration the Rule Rather than the Exception Why Data Sharing Is Critical for Accelerating Progress in Rare Disease PatientPowered Registry Boosts the Study of a Rare Disease What is Data Governance.

• Fund Raising and/or Fund Distribution

• 1242.

ROW4ALS FOUNDATION

Row4ALS raises funds for ALS patient care and research.