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Similar organisations to HEMOCHROMATOSIS INFORMATION SOCIETY

Community Rebuilding

Brooklyn Hospital Foundation Inc

The Brooklyn Hospital Center (TBHC) offers primary and specialized medical care to 300,000 patients annually.

Social Rank

8260

Location

Brooklyn

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 1199.

Hoppys Hope To End Huntingtons Disease

RAISE AWARENESS AND PROVIDE FINANCIAL SUPPORT TO ORGANIZATIONS DEDICATED TO FINDING TREATMENTS, AND ULTIMATELY, A CURE FOR HUNTINGTON'S DISEASE.

Location

NEWTOWN SQUARE

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Community Rebuilding
  • Epilepsy

  • 1200.

Where Theres A Will Theres A Cure

We are going to cure X-Linked Myotubular Myopathy.

Social Rank

1742

Location

Geneva

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Community Rebuilding

Heart for Athletes

Sudden Cardiac Arrest Prevention Baldwin County and Mobile, AL.

Social Rank

3200

Location

Spanish Fort

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Community Rebuilding

Hope4Harper

Hope4Harper is a grassroots organization designed to provide hope to those living with CDKL5 deficiency and other seizure disorders by fostering awareness and supporting research.

Location

CARROLLTON

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Community Rebuilding
  • Specifically Named Diseases

  • 1203.

Truelove Foundation Inc

PLANTING SEEDS OF HOPE & LOVE TO HELP OUR WILLIAMS SYNDROME FAMILY GROW & REACH THE WORLD PLANTING SEEDS OF HOPE & LOVE TO HELP OUR WILLIAMS SYNDROME FAMILY GROW & REACH THE WORLD ASSIST WILLIAMS SYNDROME FAMILIES About Our Foundation Currently The Truelove Foundation strives to help Williams Syndrome families across the Southeastern United States.

Social Rank

282

Location

Gainesville

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Community Rebuilding
  • Historical Societies and Related Activities

  • 1204.

Boulder Genealogical Society

BGS is here to help with your family history no matter where you are researching, also contributing to the greater genealogical community through local research The Boulder Genealogical Society is here to help you with your family history no matter your level of expertise or where you are researching.

Social Rank

11

Location

Boulder

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 1205.

Glomcon Foundation

GlomCon is a resource for the kidney community to exchange ideas, learn, educate, and collaborate on projects.

Social Rank

17373

Location

Mill Valley

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 1206.

BPAN WARRIORS

Community resources, research and CONNECTION for BPAN Warrior families (WDR45, NBIA, Rare Disease, Parkinsons, Dementia, Epilepsy, Neurodegeneration, Genetics) BPAN Warriors is a growing international community of individuals who have loved ones directly affec BPAN WARRIORS CONNECT COLLABORATE CURE HOME RESEARCH PATIENT RESOURCES OUR TRIBE OUR PARTNERS DONATE RARE POV BLOG More 414 909BPAN RAREX unveils plan to radically change data collection and sharing to accelerate advances for patients in rare disease How One Rare Disease Advocate Learned to Look Across Diseases Study Makes Economic Case for Benefits of Data Sharing to Improve Diagnosis and Treatment of Rare Disease Patients Harnessing Machine Learning to Improve Diagnosis and Treatment of Rare Diseases Making Collaboration the Rule Rather than the Exception Why Data Sharing Is Critical for Accelerating Progress in Rare Disease PatientPowered Registry Boosts the Study of a Rare Disease What is Data Governance.

Social Rank

1237

Location

BOCA RATON

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