Race for Adam Foundation

Adam Recke was diagnosed in 2005 with an extremely rare, degenerative terminal disease, Type-C Niemann-Pick Syndrome.

Rare and Undiagnosed Network Inc

RUN for those affected with rare/undiagnosed conditions: Raise awareness.

• Lung

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Alpha 1 Association

Our mission is to increase awareness of and find a cure for Alpha-1 Antitrypsin Deficiency.

• Eye Diseases, Blindness & Vision Impairment

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BCM FAMILIES FOUNDATION

To eradicate Blue Cone Monochromacy (BCM), to provide financial support for research, projects, activities and organizations related to the diagnosis, treatment and/or cure of Blue Cone Monochromacy ("BCM"),to establish networks and synergies with other groups and organizations dedicated to eye and/or other rare disease issues, to make support and resources available to BCM patients and their involved families, and to educate the general public regarding BCM.

• Health - General & Rehabilitative N.E.C.

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Mods4Quads

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• Fund Raising and/or Fund Distribution

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The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

• Birth Defects, Genetic Diseases

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Iqsec2 Research and Advocacyfoundation

Welcome to IQSEC2. ORG Research and Advocacy Foundation MISSION STATEMENT Vision In the next 10 years we will dramatically improve the quality of life for those affected by IQSEC2 mutations through 1 the establishment and dissemination of standard treatment and therapy protocols to medical practitioners and therapists worldwide 2 support of research and development of new and innovative treatments for IQSEC2 related diseases and 3 uplift support all loved ones of those affected by IQSEC2 through an advocate community and its allies.

• Public Foundations

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Orphan Disease Collective Inc

Funding research of rare diseases, supporeting promising work to develop treatments and cures.

• Specifically Named Diseases Research

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SLC6A1 CONNECT

People Magazine Exclusive Milestones for Maxwell What if your child was diagnosed with a disease so rare it didnt have a name.