• Fund Raising and/or Fund Distribution

• 118.

FINDING THE CURE FOR DM FOUNDATION

Cure4DM Providing Support through Awareness, & Raising funds for Canine Degenerative Myelopathy Research Registered Charity: 1206120 The Finding the Cure4DM Foundation was sadly dissolved on the 28 February 2023.

• Specifically Named Diseases

• 119.

NATIONAL UREA CYCLE DISORDERS FOUNDATION

Nonprofit supporting patients & families affected by urea cycle disorders.

Foxg1 Research Foundation

FOXG1 syndrome is a childhood neurological genetic disorder and is a key to understanding many brain disorders.

• Education N.E.C.

• 121.

Aarav S Time To Shine

Our goal at Aarav’s Time to Shine is to bring awareness and raise funds to assist the Cystinosis Rese AARAVS TIME TO SHINE Home About News Donate Past Events ATTS Grand Gala 2023 More WHO WE ARE Your support is important to our work at Aarav39s Time to Shine.

LIV4THECURE

Liv4TheCure’s mission is to promote awareness, help families and fund research for Wolf Hirschhorn Syndrome.

Odylia Therapeutics Inc

Nonprofit biotech accelerating drug development for #rarediseases.

• Alliance/Advocacy Organizations

• 124.

Rare-X

PATIENTS' DATA POWERING PROGRESS - RARE-X is expected to become the largest data-sharing initiative focused on rare diseases.

• Birth Defects, Genetic Diseases

• 125.

HNRNP FAMILY FOUNDATION

Nonprofit dedicated to serving those impacted by HNRNP-Related Rare Neurodevelopmental Disorders through supporting community and research Home Donate Events Learn Projects Join our Registry Join our Researcher Registry Shop Contact and Connect Submit your story HNRNPC Item HNRNPH1RNDD HNRNPH2RNDD More Our Mission The HNRNP Family Foundation is dedicated to improving the lives of patients and families around the world that live with rare HNRNPRelated Neurodevelopmental Disorders HNRNPRNDDs.

• International Relief

• 126.

FRIENDS OF IPWSO

Friends of IPWSO raises money to improve the lives of children and adults who are born with Prader-Willi Syndrome.