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Similar organisations to ARPKD/CHF Alliance

Community Rebuilding
  • Pediatrics Research

  • 1054.

INTERNATIONAL STILLBIRTH ALLIANCE NFP

The International Stillbirth Alliance is a team of parents, clinicians and researchers focused on stillbirth prevention & bereavement care #datadriven #global ISA is an alliance of member organisations and individual supporters working towards stillbirth prevention and improvement of bereavement care worldwide.

Social Rank

4467

Location

Millburn

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 1055.

KINGS TULARE CONTINUUM OF CARE ON HOMELESSNESS

Coordinate and leverage policy and resources to community partners.

Social Rank

691

Location

Visalia

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Community Rebuilding
  • Specifically Named Diseases

  • 1056.

Abetalipoproteinemia and Related Disorders Foundation

Abetalipoproteinemia and Related Disorders Foundation is a non-profit, volunteer organization that provides guidance on needed scientific research, diagnosis, and management of abetalipoproteinemia and related hypolipidemias.

Social Rank

48

Location

Woodbury

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 1057.

Rare Village Foundation

TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES We Empower Families to Create Cures for Rare Disease.

Location

Mckinney

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Community Rebuilding
  • Neurology, Neuroscience

  • 1058.

Inadcure Foundation Inc

The INADcure Foundation is a 501c3 nonprofit charity whose mission is to support the development of treatments, including a cure, for Infantile Neuroaxonal Dystrophy (INAD) and other forms of PLA2G6-related neurodegeneration (PLAN).

Location

FAIRFIELD

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Community Rebuilding
  • Heart and Circulatory System

  • 1059.

US Thrombotic Microangiopathy Alliance

The mission the USTMA Consortium is to improve outcomes in through observational studies, clinical trials of novel therapies and translational research.

Social Rank

951

Location

Groveport

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Community Rebuilding
  • Developmentally Disabled Services/Centers

  • 1060.

Bridges Pointe Housing Corporation

Official Durham Chapter member of the Sickle Cell Disease Association of America and is recognized as the NC Triangle area community-based sickle cell agency.

Social Rank

18

Location

Durham

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Community Rebuilding
  • Patient Services�Entertainment, Recreation

  • 1061.

INTERNATIONAL CHILDRENS ADVISORY NETWORK

The International Children's Advisory Network (iCAN) Home iCAN Calendar About Partners iCAN Summit Ask the Experts iCAN Programs iCAN Resources More EmpoweringPediatric PatientsWorldwide Sharing the voices of Every Kid Everywhere to foster a greater global understanding of the needs of pediatric patients.

Social Rank

404

Location

Marietta

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Community Rebuilding
  • Kidney

  • 1062.

WAIT LIST ZERO

Promoting living kidney donation, protecting living donors.

Social Rank

1175

Location

San Diego

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