• Epilepsy

• 100.

Cure Ahc Foundation

Alternating Hemiplegia of Childhood (AHC) is a complex, ultra-rare neurological disease.

• Public Health Programs

• 101.

Tova Community Health Inc

Holistic Health Practitioner. Sickle Cell Expert.

• Birth Defects, Genetic Diseases

• 102.

Uba5 Foundation

This page is to help raise awareness and connect with others that have been diagnosed UBA5 gene mutation.

COPA Syndrome Foundation

The COPA syndrome is an inherited disorder that is caused by mutations in the COPA gene.

• Fund Raising and/or Fund Distribution

• 104.

Tbc1D24 Foundation

Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.

• Fund Raising and/or Fund Distribution

• 105.

Friends of Nicer

NICER consortium brings together clinicians and researchers in hematology, immunology, rheumatology, ID and genetics NICER.

• Specifically Named Diseases Research

• 106.

Hae International

HAEi is the global umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups.

• Fund Raising and/or Fund Distribution

• 107.

BENEFIT OTHERS FOUNDATION

Helping to overcome hardships and providing opportunities for children and their families Who We Are Benefit Others Foundation is a nonprofit 501c3 organization committed to enriching the lives of others.

• Science, General (includes Interdisciplinary Scientific Activities)

• 108.

ASH REGISTRY INC

The ASH Research Collaborative (ASH RC) is a non-profit organization that was established by ASH in 2 Request for Applications RFA Open The ASH Research Collaborative ASH RC invites prospective research sites to submit applications to join the ASH RC Sickle Cell Disease SCD Research Network Council now through April 14 2025.