• Public, Society Benefit - Multipurpose & Other N.E.C.

• 100.

CheckOrphan

CheckOrphan is the leading source for news and information about rare diseases.

• Fund Raising and/or Fund Distribution

• 101.

EBSTEINS ANOMALY FOUNDATION INC

The goal of the Ebstein's Anomaly Foundation is to fund research in order to advance the diagnosis, treatment and prevention of this rare congenital heart defect.

• Private Grantmaking Foundations

• 102.

Wayland Villars Dipg Foundation Inc

OUR MISSION IS TO RAISE MONEY THROUGH FUNDRAISING EVENTS TO SUPPORT DIPG RESEARCH.

• Fund Raising and/or Fund Distribution

• 103.

Childrens Cancer Research Fund

CCRF supports the brightest scientists whose ideas make the greatest impact for children with cancer.

• Birth Defects, Genetic Diseases

• 104.

Shwachman-Diamond Syndrome Alliance Inc

Shwachman-Diamond Syndrome Alliance is a nonprofit aimed at accelerating research and therapy development for this rare disease.

Dlg4 Research Fund

DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Mission To find specific treatment options and a cure for DLG4 patients by building a collaborative network of patients, families, clinicians and scientists that will work together to raise awareness and accelerate the understanding, diagnosis and treatment of DLG4 related synaptopathy.

• Specifically Named Diseases

• 106.

Parkinsons Community Center

The center aims to provide individuals with Parkinsons the tools to live well, in addition to the mentorship and ongoing support that will allow them to establish lasting behavior changes.

• Fund Raising and/or Fund Distribution

• 107.

DHPS FOUNDATION

Leading the way in DHPS Deficiency Disorder research and education in order to find treatment, and a cure #curedhps #raredisease Our genetics make us unique our struggles and triumphs unite us.

• Fund Raising and/or Fund Distribution

• 108.

RORY DAVID DEUTSCH FOUNDATION

“If a seven year old boy can change the way the world sees pediatric brain tumors, imagine what we OUR MISSION The mission of The Rory David Deutsch Foundation is to eradicate pediatric brain tumors and other devastating childhood diseases and to make a difference in the lives of afflicted children and their families.