• Nerve, Muscle, and Bone Diseases

• 100.

THE XLH NETWORK INC

The Official Facebook Page of The XLH Network, Inc.

• Fund Raising and/or Fund Distribution

• 101.

Dravet Syndrome Foundation, Inc.

The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families.

CUREPSP

To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.

Cure LBSL

LBSL is a degenerative brain/spinal cord disease.

• Fund Raising and/or Fund Distribution

• 104.

Eleanor Kaplan Foundation Inc

To raise funds and awareness to develop cures for Ultra Rare Neurodegenerative Diseases.

• Birth Defects, Genetic Diseases

• 105.

Charlie Elenore Foundation

About Our Programs News Events Contact More.

• Alliance/Advocacy Organizations

• 106.

Haystack Project Inc

We are committed to the Ultra Rare Disease Community.

A Star for Ben Foundation Inc

STAR Foundation is a 501(c)3 non-profit, is dedicated to Salla disease research, treatment, education, awareness, and family networks.

• Specifically Named Diseases Research

• 108.

INTERNATIONAL SOCIETY FOR MANNOSIDO

ISMRD is the leading advocate for families affected by a Glycoprotein Storage Disease.