• Alliance/Advocacy Organizations

• 919.

Sickle Cell Consortium

a collective of community-based organizations, patient-advocates, community partners and research/medical advisers.

• Kidney

• 920.

THE DENT DISEASE FOUNDATION

To raise funds to support research into the causes of the disease so we may halt its progression and find a cure;To educate patients, the medical community and the public; and to promote communication among patients, their families and the medical community.

• Fund Raising and/or Fund Distribution

• 921.

Rare Village Foundation

TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES We Empower Families to Create Cures for Rare Disease.

• Alliance/Advocacy Organizations

• 922.

Allo Hope Foundation

Our mission is to prevent any harm, stillbirth or infant death caused by #Alloimmunization and Hemolytic Disease of the Fetus and Newborn (#HDFN) Our mission is to prevent harm, stillbirth and infant death caused by alloimmunization and HDFN.

• Alliance/Advocacy Organizations

• 923.

Nrxn1 Network

Our mission is to build a collaborative network of families, clinicians, and scientists in order to support individuals affected by NRXN1 disorder.

SICKLE CELL DISEASE FOUNDATION

Providing education and life-enhancing programs to individuals with sickle cell disease.

• Specifically Named Diseases

• 925.

Raiden Science Foundation

Our Mission: Harness the power of community to develop cures for rare diseases, starting with UBA5 disorder Our Vision: Make the impossible possible for Rare* Home About Research Engage Contact Us RAIDEN SCIENCE FOUNDATION Creating more than hope giving kids suffering from UBA5 Disorder a fighting chance.

• Other Medical Research N.E.C.

• 926.

FRIEDREICH'S ATAXIA RESEARCH ALLIANCE

Together, we will cure Friedreich's ataxia.

• Management & Technical Assistance

• 927.

DIABETES CARDIORENAL AND METABOLISM

DiabetesCardiorenal MetabolicInstitute About Initiatives More Practice Recommendations SERVICES Consensus Statements SERVICES Expert Consultation SERVICES Issue Exploration SERVICES Thanks for subscribing.