• Birth Defects, Genetic Diseases

• 91.

Massachusetts Sickle Cell Association Inc

A 501 (c) 3, nonprofit organization, which provides comprehensive support services to patients and families affected by Sickle Cell Disease in Massachusetts This is the Official Page of The Massachusetts Sickle Cell Association formerly known as GBSCDA.

• Fund Raising and/or Fund Distribution

• 92.

HINA PATEL FOUNDATION

Hina Patel Foundation educates individuals and families affected by Sickle Cell Disease, promoting a positive outlook and lifestyle for a greater well-being.

BEYOND BATTEN DISEASE FOUNDATION

Mission: eradicate Batten disease. Batten disease is a fatal neurodegenerative disorder that takes away childhood, and then takes away.

• Fund Raising and/or Fund Distribution

• 94.

Eleanor Kaplan Foundation Inc

To raise funds and awareness to develop cures for Ultra Rare Neurodegenerative Diseases.

• Personal Social Services

• 95.

Sickle Cell Foundation, Inc.

Hi, I am an office manager of one of Tallahassee Florida chapter Sickle Cell Foundation.

Lightning and Love Foundation

Founder of Lightning and Love foundation and mom to two ultra-rare THAP12 genetic epilepsy disease daughters searching for a cure.

• Fund Raising and/or Fund Distribution

• 97.

ASXL RARE RESEARCH ENDOWMENT FOUNDATION

Supporting research and education to improve the quality of life for those living with ASXL-related disorders #BohringOpitz #ShashiPena and #BainbridgeRopers We support research and education to improve the lives of families living with ASXL syndromes.

• Human Service Organizations

• 98.

AMERICAS COMMITTEE FOR TREATMENT AND

ACTRIMS provides leadership in the field of multiple sclerosis and other demyelinating diseases.

• Specifically Named Diseases

• 99.

Raiden Science Foundation

Our Mission: Harness the power of community to develop cures for rare diseases, starting with UBA5 disorder Our Vision: Make the impossible possible for Rare* Home About Research Engage Contact Us RAIDEN SCIENCE FOUNDATION Creating more than hope giving kids suffering from UBA5 Disorder a fighting chance.