• Private Grantmaking Foundations

• 91.

Gavin R Stevens Foundation

Our mission is to raise awareness and increase funding for research, to find a treatment and cure for blindness, focusing on Leber's Congenital Amaurosis (LCA) AWARENESS OF BLINDNESS FROM LCA var ANScustomeridbce0d824930843069bb3f3f1bcfd4038 Web Ecommerce Our Sponsors carryingcolin.

• Alliance/Advocacy Organizations

• 92.

Alliance for Regenerative Medicine

ARM champions the benefits of engineered cell therapies and genetic medicines for patients, healthcare systems, and society.

• Cancer

• 93.

The International Waldenstroms Macroglobulinemia Foundation Inc

Info, support, research grants, and more for lymphoplasmacytic lymphoma/Waldenstrom’s patients, caregivers and specialists.

• Fund Raising and/or Fund Distribution

• 94.

Sdhb Coalition Inc

Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease SEE SCHEDULE O ABOVE Vision Mission Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease namely Pheochromocytoma and Paraganglioma.

• Fund Raising and/or Fund Distribution

• 95.

Eleanor Kaplan Foundation Inc

To raise funds and awareness to develop cures for Ultra Rare Neurodegenerative Diseases.

• Specifically Named Diseases

• 96.

Niemann-Pick Childrens Fund

Niemann-Pick Children's Fund, Inc. was organized in December of 2008 in order to raise awareness of Niemann-Pick Disease Type C and its affect on families in America; to raise money to promote research to find treatments or a cure for Niemann-Pick Disease Type C: and to provide support to individuals and families affected by this disease through existing channels.

• Fund Raising and/or Fund Distribution

• 97.

Tbc1D24 Foundation

Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.

PACIFIC NORTHWEST RESEARCH INSTITUTE

PNRI unravels the powerful mysteries of genetics to drive future medical breakthroughs.

• Fund Raising and/or Fund Distribution

• 99.

THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY

Fighting for children and families affected by 4H Leukodystrophy.