• Medical Disciplines

• 91.

Pediatric Neurotransmitter Disease Association Inc

The PND association is a disease organization representing children and families who are affected by a pediatric neurotransmitter disease.

• Specifically Named Diseases Research

• 92.

GRACE SCIENCE FOUNDATION

We are changing how scientific research is done.

Cure KCNH1 Foundation

Cure KCNH1 Foundation is dedicated to advancing the development of treatments for children with KCNH1 genetic disorders.

Beck Fahrner Syndrome Foundation

Our mission is to accelerate full spectrum research to cure Beck-Fahrner Syndrome (TET3 deficiency) and to empower affected families with information, knowledge, and connectivity.

• Birth Defects, Genetic Diseases Research

• 95.

Rory Belle Foundation

We are a family run foundation established to raise funding and awareness for a gene therapy cure for the NARS1 disease.

• Birth Defects, Genetic Diseases Research

• 96.

Alstrom Angels Corp

www. alstromangels. org Dedicated to raising funds for Alstrom Syndrome genetic and medical research, increasing awareness of the rare disease among the general public and medical communities, and improving family support for those affected by the Syndrome.

• Birth Defects, Genetic Diseases Research

• 97.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

• Fund Raising and/or Fund Distribution

• 98.

HOPE FOR HARVEY FOUNDATION INC

Register for the 4th Annual Hope for Harvey Golf Tournament on 882025.

• Fund Raising and/or Fund Distribution

• 99.

WARDS FOUNDATION

Save the Date for A Rare Affair Saturday February 10 2024 at Charlotte Country Club A unique wine experience with access to rare varietals vineyards and vintages benefiting families facing rare diseases.