Foundation for Angelman Syndrome Therapeutics

FAST is the premier patient advocacy organization working to cure Angelman syndrome.

Cure SMA

Funding groundbreaking research for SMA.

National Scleroderma Foundation

A relentless force in finding a cure and improving the lives of people affected by #scleroderma.

• Management & Technical Assistance

• 94.

Pathways Corp

To elevate the patient's voice to increase access to care and eliminate bias by bringing stakeholders together Home Our Team Events Initiatives Partners Media Kit Contact More Its Time to Listen to the Rare Disease Community.

• Specifically Named Diseases Research

• 95.

Sleep Consortium

Sleep Consortium accelerates next-generation research and therapy development for Central Disorders of Hypersomnolence through a data collection ecosystem.

Cure Pogz Disorders Foundation Inc

The ‘Cure Pogz Disorders Foundation’ ( CPDF) Mission is to urgently improve the lives of individuals and families affected by POGZ gene disorders by funding and accelerating cutting-edge science to discover treatments integral to our Path to Cure.

The Osteosarcoma Institute

Our goal is to develop and execute a comprehensive, rational strategy to improve dramatically the life expectancy of relapsed and metastatic patients.

• Fund Raising and/or Fund Distribution

• 98.

Believe in A Cure, Inc.

Believe in a Cure, Inc. is a 501(c)(3) tax-exempt organization whose mission is to: (1) support the care and treatment of individuals diagnosed with FOXG1 Syndrome and similar disorders, as well as to raise public awareness regarding such issues; and (2) support research and development of learnings and methods to improve the qualify of life for patients with such disorders.

• Down's Syndrome

• 99.

LUMIND IDSC FOUNDATION

We accelerate research to improve health for all with Down syndrome & empower families with support.