
Home - Dravet Syndrome Foundation
270924627
2009
Cherry Hill, NJ 08034 USA
dravetfoundation.org
curedravet
DravetSyndromeFoundation
1033473
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News

From Texas to Tennessee, our Day of Dravet workshops have already brought together dozens of families this year—and there’s more to come! We’re excited for the next stops on our 2025 tour and grateful to Presenting Sponsor Harmony Biocsciences for their support to make these community connections possible. 💜 📍Upcoming Dates: Tacoma, WA – June 21 Gurnee, IL – August 23 Hershey, PA – September 20 👉 Learn more: https://bit.ly/44R2Lsk #DayOfDravet #CureDravet (fb)

We celebrate the life of Dr. Charlotte Dravet, who passed away this past weekend. She leaves behind a remarkable legacy in epilepsy research. Her pioneering work in identifying Dravet syndrome brought vital awareness and understanding to a rare and devastating condition. We honor her contributions and extend our heartfelt condolences to her family and all those touched by her life’s work. 💜 (fb)

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About the organization
- H12, G54 -
What is Dravet Syndrome. Dravet syndrome also known as Severe Myoclonic Epilepsy of Infancy SMEI is a rare form of intractable epilepsy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime. It has an estimated incidence rate of 115700. 1 In Research Funding Grants Funded Research Roundtables Active Clinical Trials Patient Assistance Grants Educational Conferences Community.
Fund Raising and/or Fund Distribution Epilepsy