SMS Research Foundation
The mission of the Smith-Magenis Syndrome Research Foundation is to advance scientific research leading to innovative treatment options for people living with SMS. The mission of the SMS Research Foundation is to advance scientific research leading to innovative treatment options for people living with Smith-Magenis Syndrome (SMS). Since our founding in 2010, we have been singularly focused on investing in scientific research that will lead to life-changing therapeutics for this rare and complex genetic syndrome.
Founded
2010
3700
Web
smsresearchfoundation.org
Address
Georgetown
Smith-Magenis Syndrome Research Foundation Watch Now Aarons Story In the most loving and articulate way SMSRF board member Jennifer Sauer and her husband Brian open up about the challenges and complexities of raising their son Aaron with SmithMagenis Syndrome SMS. New Style Same Mission Introducing SMSRFs new visual identity designed to blend tradition with innovation. New SMS Research Findings Were excited to share the latest findings on the RAI1 gene pivotal in brain development explored through innovative studies in mice marmosets and human cells. Exciting News.
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Official Smith-Magenis Syndrome Foundation UK - Facebook Page.
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From Social media
News about SMS Research Foundation from their social media (Facebook and X).
- SMS Research Foundation
- 2025-06-02
Have you gotten your ‘I Love Someone with SMS’ decal. (fb) ... more
Liked (6) Commented (0)
- SMS Research Foundation
- 2025-05-31
Strength and tenderness – together, they create an unstoppable force. (fb) ... more
Liked (4) Commented (0)Discussions
Odpovědí v diskuzi
1
What are some innovative treatment options currently being explored for Smith-Magenis Syndrome, and how can the community support these efforts?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can we enhance awareness and understanding of Smith-Magenis Syndrome among healthcare professionals and the general public?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So inspired by the work SMSRF is doing! Understanding Smith-Magenis Syndrome is crucial, and I love how you're pushing for innovative treatments. Keep it up! ❤️
Brooklyn Simmons
Product Manager
Jennifer and Brian's story really touched my heart. Thank you for sharing the challenges and triumphs of raising Aaron. It helps us all understand and support families affected by SMS better! 🌟
Brooklyn Simmons
Product Manager
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