
Welcome - The Global Foundation for Peroxisomal Disorders
273646193
2010
Tulsa, OK 74153 USA
thegfpd.org
thegfpd
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News

The work of the GFPD would not be possible without the dedication of our selfless volunteers. 💚 Today, we celebrate a loved volunteer, Vicky Maag! 💚 Vicky has been a dedicated volunteer for 15 years❗ After attending the 2011 conference with her #GFPDWarrior, Kenna, Vicky dove into helping the GFPD in many ways! Over the years, Vicky has worn many hats, serving on the Conference Planning Committee, the Community Advisory Committee, and as a former F2FC Facilitator. Since 2011, she has not only attended every conference but volunteered at each one, tirelessly giving her time and energy. From taking time off work to prepare in the weeks leading up to the event, arriving early to unload and set up, working long hours, serving as a room host, supporting families, and handling the countless behind-the-scenes tasks that keep everything running. Her impact has been felt across our entire community. 🌟 We thank Vicky for her many years of service to the GFPD and look forward to many more! #GFPD #VolunteerHeroes #MakeADifference #PBDZSD #RareDiseaseAwareness #RareDisease #FindACure #GFPDisFamily #GFPDisResearch #GFPDisHope #ZellwegerSyndrome #ZellwegerSpectrumDisorder #PeroxisomalDisorder #MedicallyComplexKids #DBPD #AMACRD #ACOX #CommunityConnections (fb)


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About the organization
- 918, G12, G99, H20 -
Our Mission Our Goal Vision Commitment Newly Diagnosed Families Support Resources Take Action Volunteer Participate or Donate Who we are In 2010 parents Shannon Butalla and Melissa Gamble joined to cofound the Global Foundation for Peroxisomal Disorders bringing together families impacted by peroxisome disorders including Peroxisome Biogenesis DisorderZellweger Spectrum Disorder PBDZSD and the related single enzyme peroxisomal disorders. Our Mission To improve the lives of individuals with peroxisomal disorders by funding research championing scientific collaboration and empowering families and professionals through educational programs and support services. Our Work Through these connections with medical and scientific professionals and family support networks our foundation is a resource for families who have received a diagnosis of a peroxisomal disorder in the Zellweger spectrum including those formally known as Neonatal Adrenoleukodystrophy NALD and Infantile Refsum Disease IRD as well as single enzyme disorders DBifunctional Protein Deficiency DBPD and AcylCoA Oxidase Deficiency ACOX deficiency. Our Board of Directors is made up of parents of children who have been diagnosed with disorders in this spectrum as well as members of the Tulsa OK community where the the GFPD is headquartered.
Fund Raising and/or Fund Distribution Diseases, Disorders, Medical Disciplines N.E.C. Birth Defects, Genetic Diseases Research