
Welcome - The Global Foundation for Peroxisomal Disorders
273646193
2010
Tulsa, OK 74153 USA
thegfpd.org
thegfpd
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About the organization
- 918, G12, G99, H20 -
Our Mission Our Goal Vision Commitment Newly Diagnosed Families Support Resources Take Action Volunteer Participate or Donate Who we are In 2010 parents Shannon Butalla and Melissa Gamble joined to cofound the Global Foundation for Peroxisomal Disorders bringing together families impacted by peroxisome disorders including Peroxisome Biogenesis DisorderZellweger Spectrum Disorder PBDZSD and the related single enzyme peroxisomal disorders. Our Mission To improve the lives of individuals with peroxisomal disorders by funding research championing scientific collaboration and empowering families and professionals through educational programs and support services. Our Work Through these connections with medical and scientific professionals and family support networks our foundation is a resource for families who have received a diagnosis of a peroxisomal disorder in the Zellweger spectrum including those formally known as Neonatal Adrenoleukodystrophy NALD and Infantile Refsum Disease IRD as well as single enzyme disorders DBifunctional Protein Deficiency DBPD and AcylCoA Oxidase Deficiency ACOX deficiency. Our Board of Directors is made up of parents of children who have been diagnosed with disorders in this spectrum as well as members of the Tulsa OK community where the the GFPD is headquartered.
Fund Raising and/or Fund Distribution Diseases, Disorders, Medical Disciplines N.E.C. Birth Defects, Genetic Diseases Research