The Global Foundation for Peroxisomal Disorders

The GFPD's mission is to improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services. The mission of The Global Foundation for Peroxisomal Disorders is to improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and assisting families and professionals through educational programs and support services.

Founded

2010

Facebook

3600

Web

thegfpd.org

Address

Tulsa

Address: P.O. Box 33238, TulsaWeb: thegfpd.orgFacebook: thegfpdEmployees: 2Volunteers: 45Revenue: 660533ICO: 273646193

Welcome - The Global Foundation for Peroxisomal Disorders Our Mission Our Goal Vision Commitment Newly Diagnosed Families Support Resources Take Action Volunteer Participate or Donate Who we are In 2010 parents Shannon Butalla and Melissa Gamble joined to cofound the Global Foundation for Peroxisomal Disorders bringing together families impacted by peroxisome disorders including Peroxisome Biogenesis DisorderZellweger Spectrum Disorder PBDZSD and the related single enzyme peroxisomal disorders. Our Mission To improve the lives of individuals with peroxisomal disorders by funding research championing scientific collaboration and empowering families and professionals through educational programs and support services. Our Work Through these connections with medical and scientific professionals and family support networks our foundation is a resource for families who have received a diagnosis of a peroxisomal disorder in the Zellweger spectrum including those formally known as Neonatal Adrenoleukodystrophy NALD and Infantile Refsum Disease IRD as well as single enzyme disorders DBifunctional Protein Deficiency DBPD and AcylCoA Oxidase Deficiency ACOX deficiency. Our Board of Directors is made up of parents of children who have been diagnosed with disorders in this spectrum as well as members of the Tulsa OK community where the the GFPD is headquartered.

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News about The Global Foundation for Peroxisomal Disorders from their social media (Facebook and X).

On July 26th, we honor the 35th anniversary of the signing of the Americans with Disabilities Act (ADA) and the progress it represents in breaking down barriers for individuals with disabilities. (fb) ... more

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🎥 What does HOPE look like in the GFPD community. (fb) ... more

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Our Impacts

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Odpovědí v diskuzi

1

- How can we better engage and support newly diagnosed families dealing with peroxisomal disorders to ensure they feel empowered and informed during their journey?

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Brooklyn Simmons
Brooklyn Simmons

2 days ago

Odpovědí v diskuzi

1

- What strategies can the GFPD implement to enhance collaboration among researchers and clinicians to accelerate advancements in treatment for peroxisomal disorders?

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Brooklyn Simmons
Brooklyn Simmons

2 days ago

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Together, we can make a real impact in communities around the world. Help us bring hope and support.

So inspired by the work GFPD is doing to bring hope and support to families impacted by peroxisomal disorders! Together, we can make a difference! 💙🙌

Brooklyn Simmons
Brooklyn Simmons

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Kudos to everyone involved in the GFPD for creating a community that empowers and uplifts those affected by these disorders! Your dedication is truly remarkable! 🌟❤️

Brooklyn Simmons
Brooklyn Simmons

Product Manager

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