The Global Foundation for Peroxisomal Disorders
The GFPD's mission is to improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services. The mission of The Global Foundation for Peroxisomal Disorders is to improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and assisting families and professionals through educational programs and support services.
Founded
2010
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Welcome - The Global Foundation for Peroxisomal Disorders Our Mission Our Goal Vision Commitment Newly Diagnosed Families Support Resources Take Action Volunteer Participate or Donate Who we are In 2010 parents Shannon Butalla and Melissa Gamble joined to cofound the Global Foundation for Peroxisomal Disorders bringing together families impacted by peroxisome disorders including Peroxisome Biogenesis DisorderZellweger Spectrum Disorder PBDZSD and the related single enzyme peroxisomal disorders. Our Mission To improve the lives of individuals with peroxisomal disorders by funding research championing scientific collaboration and empowering families and professionals through educational programs and support services. Our Work Through these connections with medical and scientific professionals and family support networks our foundation is a resource for families who have received a diagnosis of a peroxisomal disorder in the Zellweger spectrum including those formally known as Neonatal Adrenoleukodystrophy NALD and Infantile Refsum Disease IRD as well as single enzyme disorders DBifunctional Protein Deficiency DBPD and AcylCoA Oxidase Deficiency ACOX deficiency. Our Board of Directors is made up of parents of children who have been diagnosed with disorders in this spectrum as well as members of the Tulsa OK community where the the GFPD is headquartered.
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The Global Foundation for Peroxisomal Disorders
On July 26th, we honor the 35th anniversary of the signing of the Americans with Disabilities Act (ADA) and the progress it represents in breaking down barriers for individuals with disabilities. To coincide with the anniversary of ADA, July is #DisabilityPrideMonth—a time to celebrate the strength, resilience, and contributions of the disability community. For our #GFPDWarriors and families, the ADA is more than legislation—it’s a promise of accessibility, inclusion, and the right to live life fully.
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