International Pnh Interest Group

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Altamonte Springs

Address: 222 S Westmonte Dr Ste 111, Altamonte SpringsWeb: Sign in to see organisation websiteICO: 261079735

International PNH Interest Group Cookie settings Save the Date. Paris France ESHEBMTEHAIPIG 3rd Translational Research Conference Bone Marrow Failure and Leukemia Predisposition Syndromes IPIG Friday Satellite Symposium at ASH Annual Meeting Exposition Our mission The mission of the International PNH Interest Group is to advance optimal treatment and care of people living with paroxysmal nocturnal hemoglobinuria PNH and related conditions to provide instruction information and training to health care providers and to help further research on new and effective treatment options and improved patient access to approved therapies and treatments. Collaboration announcement The Max Foundation Max and the International PNH Interest Group IPIG AnnounceCollaboration to Improve Care and Management for People Living with ParoxysmalNocturnal Hemoglobinuria PNH in LowResource Countries Save the date. The International PNH Interest Groups 2nd Scientific Conference will be held on May1516 2025 in the beautiful city of Paris France.

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Catherine

2. What innovative research approaches could be pursued to address the gaps in treatment options for patients living with PNH, particularly in underserved regions?

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Patrick

So excited about the upcoming conference in Paris! 🌍✨ Together, we can make a real difference for those living with PNH. Let's keep pushing for better treatments and support! πŸ’ͺ❀️

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Victor

Thrilled to hear about the collaboration with The Max Foundation! It's so important to ensure everyone, no matter where they live, has access to the best care for PNH. Let's work together to change lives! πŸ™ŒπŸ’–

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Vera

1. How can we enhance collaboration between international NGOs and local health care providers to improve the management of PNH in low-resource countries?

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