Dandy-Walker Alliance, Inc.

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We connect families, raise awareness, and fund research into Dandy-Walker Syndrome. We support all efforts to determine the cause(s) of, find the cure for and to ameliorate the effects of Dandy-Walker Syndrome.

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261265282

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Kensington

Address: 10325 Kensington Pkwy Suite 384, KensingtonWeb: Sign in to see organisation websiteFacebook: dandywalkerRevenue: 59262ICO: 261265282

Dandy-Walker Alliance – Hosting a forum for open dialogue about Dandy-Walker Syndrome DandyWalker Alliance One in 10000 children is born with DandyWalker Malformation a congenital brain malformation involving the cerebellum and the fluidfilled spaces around it. DandyWalker is often associated with other conditions such as hydrocephalus seizures mobility issues developmental delays other central nervous system disorders and more. The DandyWalker Alliance is dedicated to serving and supporting everyone affected by DandyWalker. Use the menu below to learn more about our work.

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Hannah

What are some effective strategies for raising awareness about Dandy-Walker Syndrome in local communities, and how can we involve families in these efforts?

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Dandy-Walker Alliance, Inc.

As Dandy-Walker Awareness Month comes to a close, we want to thank everyone who shared their story and helped raise awareness this month. We want to give a special thank you to the Maryland community for showing up for Thursday's Brewing Awareness event at Manor Hill Brewing. Even though May is over, we're excited to continue our awareness, support, and research efforts throughout the year.

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Alan

💙 Thank you, Dandy-Walker Alliance, for creating a supportive community for families facing Dandy-Walker Syndrome! Your dedication to raising awareness and funding research is truly inspiring. Every story shared brings hope and understanding to others. #DandyWalkerAwareness

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Peter

How can we improve support systems for families navigating the challenges of Dandy-Walker Syndrome, particularly in terms of mental health and access to resources?

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Nicole

🌟 Love seeing the amazing work you do! It's so important to connect families and provide a platform for sharing experiences. Together, we can spread awareness and support everyone affected by Dandy-Walker. Keep it up! 💪 #StrongerTogether

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