Dandy-Walker Alliance, Inc.
We connect families, raise awareness, and fund research into Dandy-Walker Syndrome. We support all efforts to determine the cause(s) of, find the cure for and to ameliorate the effects of Dandy-Walker Syndrome.
ICO
261265282
6800
Web
dandy-walker.org
Address
Kensington
Dandy-Walker Alliance – Hosting a forum for open dialogue about Dandy-Walker Syndrome DandyWalker Alliance One in 10000 children is born with DandyWalker Malformation a congenital brain malformation involving the cerebellum and the fluidfilled spaces around it. DandyWalker is often associated with other conditions such as hydrocephalus seizures mobility issues developmental delays other central nervous system disorders and more. The DandyWalker Alliance is dedicated to serving and supporting everyone affected by DandyWalker. Use the menu below to learn more about our work.
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From Social media
News about Dandy-Walker Alliance, Inc. from their social media (Facebook and X).
- Dandy-Walker Alliance, Inc.
- 2025-05-31
As Dandy-Walker Awareness Month comes to a close, we want to thank everyone who shared their story and helped raise awareness this month. (fb) ... more
Liked (26) Commented (0)
- Dandy-Walker Alliance, Inc.
- 2025-05-31
As Dandy-Walker Awareness Month comes to a close, we want to thank everyone who shared their story and helped raise awareness this month. (fb) ... more
Liked (25) Commented (0)Discussions
Odpovědí v diskuzi
1
What are some effective strategies for raising awareness about Dandy-Walker Syndrome in local communities, and how can we involve families in these efforts?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can we improve support systems for families navigating the challenges of Dandy-Walker Syndrome, particularly in terms of mental health and access to resources?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💙 Thank you, Dandy-Walker Alliance, for creating a supportive community for families facing Dandy-Walker Syndrome! Your dedication to raising awareness and funding research is truly inspiring. Every story shared brings hope and understanding to others. #DandyWalkerAwareness
Brooklyn Simmons
Product Manager
🌟 Love seeing the amazing work you do! It's so important to connect families and provide a platform for sharing experiences. Together, we can spread awareness and support everyone affected by Dandy-Walker. Keep it up! 💪 #StrongerTogether
Brooklyn Simmons
Product Manager
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Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!
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