🎶 Watch how Ally’s love for music was planted at the 2011 NFED Family Conference! Diagnosed with ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome as a baby, Ally has never let it define her. With the support of the NFED community, she found her spark on stage at our Family Conference talent shows singing her favorite Disney songs. Now a music therapy student at Florida State University, she is using her passion to help others heal—and she’s coming full circle by leading a music therapy session at this year’s conference! 🌱 Help us plant more seeds so kids like Ally can blossom. Donate today: www.nfed.org/springappeal25 #EctodermalDysplasias #Donate #MusicTherapy (fb)

🦷✨ Colt’s Small Dentures Make a Big Difference When Zabrina was pregnant, she knew there was a strong chance her son would be diagnosed with ectodermal dysplasia—just like herself, Colt’s grandfather, and great-grandmother. After genetic testing confirmed x-linked hypohidrotic ectodermal dysplasia (XLHED), Zabrina began the search for the right care. Thanks to a dedicated specialist team in Houston, Colt’s denture journey is off to an amazing start, and it’s already making a big impact on his smile and confidence. 👉 Read Colt's inspiring story, authored by his mom Zabrina: https://nfed.org/blog/colts-small-dentures/ #NFED #EctodermalDysplasias #DentalCare #XLHED #RareDisease (fb)