National Foundation for Ectodermal Dysplasias
Use our advocacy tool to take action now and reach out to your members of Congress for support. https://t.co/qFsb8TN165… Our mission is to empower and connect people touched by ectodermal dysplasias through education, support and research. This page provides information and support for the ectodermal dysplasias community. Sign up for Updates: http://eepurl.com/JIjL The National Foundation for Ectodermal Dysplasias' mission is to empower and connect people touched by ectodermal dysplasias through education, support, and research. The ectodermal dysplasias are heritable conditions that involve defects in the hair, teeth, nails and sweat glands. Symptoms can range from mild to severe.
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National Foundation for Ectodermal Dysplasias
🦷✨ Colt’s Small Dentures Make a Big Difference When Zabrina was pregnant, she knew there was a strong chance her son would be diagnosed with ectodermal dysplasia—just like herself, Colt’s grandfather, and great-grandmother. After genetic testing confirmed x-linked hypohidrotic ectodermal dysplasia (XLHED), Zabrina began the search for the right care. Thanks to a dedicated specialist team in Houston, Colt’s denture journey is off to an amazing start, and it’s already making a big impact on his smile and confidence.
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National Foundation for Ectodermal Dysplasias
🎶 Watch how Ally’s love for music was planted at the 2011 NFED Family Conference. Diagnosed with ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome as a baby, Ally has never let it define her. With the support of the NFED community, she found her spark on stage at our Family Conference talent shows singing her favorite Disney songs.
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Our mission is to empower and connect people touched by ectodermal dysplasias through education, support and research.
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National Foundation for Ectodermal Dysplasias
Our mission is to empower and connect people touched by ectodermal dysplasias through education, support and research.
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