Cystinosis Research Foundation

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The Cystinosis Research Foundation’s (CRF) mission is to find better treatments and a cure for cystinosis, a rare genetic disease that destroys every organ. CRF's mission is to support bench, clinical and translational cystinosis research to find better tre The Cystinosis Research Foundation is dedicated to finding better treatments to improve the quality of life for those with cystinosis and to ultimately find a cure for this devastating disease. CRF is committed to finding a cure through an aggressively funded research agenda. CRF issues research grants bi-annually to accelerate the research process and to ensure that there is never a gap in funding new cutting-edge research ideas. We are focused and determined to improve the quality of life for our patients and to find better treatments, including a cure, for our adults and children living with cystinosis.

Founded

2003

Facebook

4500

X (Twitter)

616

Address

Irvine

Address: 19200 Von Karman Ave Suite 920, IrvineWeb: Sign in to see organisation websiteFacebook: CystinosisResearchFoundationX (Twitter): NataliesWishEmployees: 1Volunteers: 5Revenue: 3187305ICO: 320067668

Cystinosis Research Foundation - Together We Shine Bright Together We Shine Bright Who We Are Learn about our Mission Story and Research Advancements. Family Stories Each family has a unique story about how cystinosis has impacted their lives. For Researchers All the information for your researchers in one place. Natalies Wish Get the latest information on our biggest event of the year Natalies Wish.

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News about from their social media (Facebook and X).

Cystinosis Research Foundation

Since January, the Cystinosis Research Foundation has awarded $1,023,953 in research grant payments across 7 countries — fueling innovation and accelerating the path to better treatments and a cure. From Canada to Italy, and the U. S.

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Dorothy

1. How can patient stories be leveraged to raise awareness and drive funding for cystinosis research?

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Brenda

2. What strategies can the Cystinosis Research Foundation implement to engage more researchers in clinical trials focused on cystinosis?

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Evelyn

Love the commitment and passion of the Cystinosis Research Foundation! Together we can make a difference and bring hope to those affected by this rare disease. 💖 #TogetherWeShineBright

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David

So inspired by the stories shared by families impacted by cystinosis! Every step in research brings us closer to better treatments and a cure. Let's keep shining bright! 🌟 #CystinosisResearch

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