INTERNATIONAL FOUNDATION FOR CDKL5 RESEARCH
This account used to avoid confusion by impersonation - please find us @CDKL5_IFCR To treat and cure CDKL5 Deficiency Disorder by funding scientific research, while helping affected individuals and their families to thrive.
Founded
2009
0
X (Twitter)
2
Address
Wadsworth
Home | International Foundation for CDKL5 Research Turning Hope Into Action 500 45 10 Recently Diagnosed Centers of Excellence Learn From Us Connect CDKL5 Stay Informed Get the latest news about the IFCR programs new resources and ways to get involved. . .
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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From Social media
News about INTERNATIONAL FOUNDATION FOR CDKL5 RESEARCH from their social media (Facebook and X).
- INTERNATIONAL FOUNDATION FOR CDKL5 RESEARCH
- 2024-08-23
🚨 Share your insights by Aug 31. #CDKL5 Survey Opportunity You are invited to participate in a new research study that will help to understand the changes in functional abilities that are meaningful to a child's function and quality of life. (tw) ... more
Liked (0) Commented (0)- INTERNATIONAL FOUNDATION FOR CDKL5 RESEARCH
- 2024-08-20
Learn more about #CDKL5 research priorities here: https://t. (tw) ... more
Liked (0) Commented (0)Discussions
Odpovědí v diskuzi
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1. What are some innovative ways that NGOs like the International Foundation for CDKL5 Research can leverage social media to raise awareness and support for rare conditions like CDKL5 deficiency?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we better engage families and individuals affected by CDKL5 in the research process to ensure that their voices are heard and their needs are prioritized?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💚 So grateful for the amazing work you all are doing! Together, we can make a difference for those affected by CDKL5 Deficiency Disorder. Let's keep pushing for breakthroughs in research! #HopeIntoAction
Brooklyn Simmons
Product Manager
🌟 Thank you, IFCR! Your commitment to funding research and supporting families is truly inspiring. Excited to see what the future holds for those living with CDKL5! #TogetherWeStand
Brooklyn Simmons
Product Manager
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Kendall Monroe
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As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.
Brooklyn Simmons
Product Manager
Clean, community-driven, and full of heart — love it.
Kendall Monroe
Product Manager
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Madison Carter
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Riley Bennett
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A brilliant resource for anyone who wants to do good more effectively.
Sydney Parker
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Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!
Jordan Blake
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Finally, a platform that brings transparency and accessibility to the nonprofit world. Eduo makes it simple to see who’s doing meaningful work and how to get involved.
Brooklyn Simmons
Product Manager
I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.
Kendall Monroe
Product Manager
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