INTERNATIONAL FOUNDATION FOR CDKL5 RESEARCH

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This account used to avoid confusion by impersonation - please find us @CDKL5_IFCR To treat and cure CDKL5 Deficiency Disorder by funding scientific research, while helping affected individuals and their families to thrive.

Founded

2009

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0

X (Twitter)

2

Address

Wadsworth

Address: PO Box 926, WadsworthWeb: Sign in to see organisation websiteX (Twitter): CDKL5_IFCRVolunteers: 12Revenue: 639182ICO: 270950477

Home | International Foundation for CDKL5 Research Turning Hope Into Action 500 45 10 Recently Diagnosed Centers of Excellence Learn From Us Connect CDKL5 Stay Informed Get the latest news about the IFCR programs new resources and ways to get involved. . .

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News about from their social media (Facebook and X).

Patrick

1. What are some innovative ways that NGOs like the International Foundation for CDKL5 Research can leverage social media to raise awareness and support for rare conditions like CDKL5 deficiency?

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Valerie

2. How can we better engage families and individuals affected by CDKL5 in the research process to ensure that their voices are heard and their needs are prioritized?

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Matthew

💚 So grateful for the amazing work you all are doing! Together, we can make a difference for those affected by CDKL5 Deficiency Disorder. Let's keep pushing for breakthroughs in research! #HopeIntoAction

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Diana

🌟 Thank you, IFCR! Your commitment to funding research and supporting families is truly inspiring. Excited to see what the future holds for those living with CDKL5! #TogetherWeStand

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Wadsworth

Organisations from INTERNATIONAL FOUNDATION FOR CDKL5 RESEARCH

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