Cohen Syndrome Association

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Welcome to the Official fan page of the Cohen Syndrome Association ®. We A.R.E. Cohen Syndrome We Advocate, Research & Educate families and professionals about Cohen Syndrome.

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263507520

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Middlefield

Address: PO Box 845, MiddlefieldWeb: Sign in to see organisation websiteFacebook: Cohen-Syndrome-Association-106234886074462ICO: 263507520

Cohen Syndrome | COH1 | Pepper Syndrome - International Parent Association for Children with Cohen Syndrome Cohen Syndrome Welcome to Cohen Syndrome Association Welcome to Cohen Syndrome Association Cohen Syndrome is a rare genetic disorder associated with mutations present at COH1 within chromosome 8 and is often undiagnosed for many years. Globally fewer than 1000 cases have been reported. The Cohen Syndrome Association was founded by parents to raise awareness of this disease with the goal of educating parents and professionals to assure earlier diagnosis and medical interventions. The Cohen Syndrome Association was founded in 2008 as a result of a family gathering in Middlefield Ohio thanks to a call for parent leadership from the DDC Clinic for Special Needs Children.

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Eric

- What role do social media platforms play in connecting families affected by Cohen Syndrome, and how can we leverage them for greater impact?

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Yvette

So inspired by the dedication and passion of the Cohen Syndrome Association! Together, we can raise awareness and help families navigate this journey. 💙 #CohenSyndromeAwareness

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Martin

- How can we improve early diagnosis and awareness of Cohen Syndrome in medical communities worldwide?

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Maggie

It's amazing to see how far the Cohen Syndrome Association has come since 2008! Let's keep spreading knowledge and support for all families affected by Cohen Syndrome. 🙌 #WeARECohenSyndrome

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Nerve, Muscle, and Bone Diseases Category

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114. Cohen Syndrome Association

Welcome to the Official fan page of the Cohen Syndrome Association ®.

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