Spinal Muscular Atrophy Foundation

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The mission of the Spinal Muscular Atrophy Foundation is to accelerate the development of a treatment for SMA, the number one genetic killer of infants and toddlers.

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SMA Foundation | Home The mission of the Spinal Muscular Atrophy Foundation is to accelerate the development of treatments for SMA. Spinal Muscular Atrophy is the leading genetic cause of death in young children. 1 in 50 people are carriers of the disease. Three FDA approved drugs are now available.

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Anna

Thank you to everyone involved in the SMA Foundation for your tireless work! Together, we can make a difference and bring hope to families affected by Spinal Muscular Atrophy. 💪✨

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Christina

1. What innovative fundraising strategies have you seen that could help the Spinal Muscular Atrophy Foundation further its mission in light of recent advancements in treatment?

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Jessica

So sorry to hear about the passing of Steve Mikita. His dedication to the SMA Foundation and the fight against this devastating disease will always be remembered. ❤️

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Daniela

2. How can we better engage and support families affected by Spinal Muscular Atrophy in the clinical trial process, ensuring their voices are heard and needs are met?

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