NBIA DISORDERS ASSOCIATION
NBIA Disorders Association is a non-profit organization dedicated to NBIA community efforts. Our Mission In our drive to find a cure for NBIA, we provide support to families, educate the public and accelerate research with collaborators from around the world. Our Vision A world in which NBIA Disorders no longer causes suffering or loss of life. 1. To provide a supportive environment for sharing needs, concerns and experiences, and up-to-date treatment and care options. 2. To increase recognition of NBIA among healthcare professionals for early diagnosis and optimal care. 3. To participate with our affiliated NBIA lay advocacy groups in other countries. 4. To build an expanding base of contributors to achieve our vision. 5. To encourage, guide and fund research for treatments and cures for NBIA disorders.
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1996
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