Hemophilia Foundation of Upstate New York Inc

Hemophilia Foundation of Upstate New York Inc.

The Hemophilia Foundation of Upstate New York Inc. is a U.S. nonprofit organization founded in 2010. It is dedicated to providing support and education to individuals and families affected by bleeding disorders in the Rochester/Finger Lakes Region of New York State.

Mission

The foundation's mission is to assist individuals with bleeding disorders through various forms of support, aiming to enhance their quality of life.

Vision

Their vision is for people with bleeding disorders to have full access to comprehensive care without facing physical, financial, or emotional burdens.

History

The foundation was established by a group of volunteers who received care at the Mary M. Gooley Hemophilia Center in Rochester, NY. The initiative behind forming the foundation was to create a separate entity that could provide direct financial assistance to those in need, as the Mary M. Gooley Hemophilia Center—being a federally recognized Hemophilia Treatment Center—cannot legally offer such support due to its legal status and participation in the 340(b) pharmacy program.

Organization

The Hemophilia Foundation of Upstate New York Inc. is a registered 501(c)(3) nonprofit organization governed by an independent board of directors. It relies on fundraising efforts to support its services and programs for the bleeding disorders community.

Services

The foundation focuses on providing financial and resource assistance to individuals with bleeding disorders in the region. It works to foster a supportive environment where those affected can access necessary resources and advocacy.

EIN

The organization's Employer Identification Number (EIN) is 27-2555684.

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ICO

272555684

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Web

hfuny.org

Address

Rochester

Address: 70 Linden Oaks Third Floor, RochesterWeb: hfuny.orgICO: 272555684

Homepage - Hemophilia Foundation of Upstate New York 70 Linden Oaks Rochester NY 14625 About HFUNY The Hemophilia Foundation of Upstate New York HFUNY was formed in 2010 to be a source of support and education for the bleeding disorders community in the RochesterFinger Lakes Region of New York State. Our founding members were a small group of volunteers who received their care at the Mary M. Gooley Hemophilia Center in Rochester NY. They had a shared vision to create a separate foundation from the Center that had the ability to directly provide financial and resource assistance to those in need who have bleeding disorders within our region.

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HEMOPHILIA ONTARIO (ca)

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Haemophilia Foundation Wa Inc (au)

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Haemophilia Foundation NSW Inc (au)

Haemophilia Foundation Australia (HFA) represents people with inherited bleeding disorders and their families.

HAEMOPHILIA WALES (uk)

Haemophilia Wales provides information, support and advocacy to everyone with Haemophilia, Von Willebrands and other bleeding disorders.

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Our Impacts

Discussions

Odpovědí v diskuzi

1

1. What are some innovative fundraising strategies that HFUNY could implement to further support individuals with bleeding disorders in our community?

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Brooklyn Simmons
Brooklyn Simmons

2 days ago

Odpovědí v diskuzi

1

2. How can HFUNY enhance its educational outreach to raise awareness about hemophilia and other bleeding disorders among healthcare providers and the general public?

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Brooklyn Simmons
Brooklyn Simmons

2 days ago

}
Voices of Others

Latest reviews

Together, we can make a real impact in communities around the world. Help us bring hope and support.

What an incredible mission! It's so inspiring to see a community come together to support those in need. Keep up the amazing work, HFUNY! 💙

Brooklyn Simmons
Brooklyn Simmons

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I'm so grateful for the resources and support HFUNY provides to those with bleeding disorders. Together we can make a difference! #BleedingDisordersAwareness

Brooklyn Simmons
Brooklyn Simmons

Product Manager

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