Hemophilia Foundation of Upstate New York Inc.

The Hemophilia Foundation of Upstate New York Inc. is a U.S. nonprofit organization founded in 2010. It is dedicated to providing support and education to individuals and families affected by bleeding disorders in the Rochester/Finger Lakes Region of New York State.

Mission

The foundation's mission is to assist individuals with bleeding disorders through various forms of support, aiming to enhance their quality of life.

Vision

Their vision is for people with bleeding disorders to have full access to comprehensive care without facing physical, financial, or emotional burdens.

History

The foundation was established by a group of volunteers who received care at the Mary M. Gooley Hemophilia Center in Rochester, NY. The initiative behind forming the foundation was to create a separate entity that could provide direct financial assistance to those in need, as the Mary M. Gooley Hemophilia Center—being a federally recognized Hemophilia Treatment Center—cannot legally offer such support due to its legal status and participation in the 340(b) pharmacy program.

Organization

The Hemophilia Foundation of Upstate New York Inc. is a registered 501(c)(3) nonprofit organization governed by an independent board of directors. It relies on fundraising efforts to support its services and programs for the bleeding disorders community.

Services

The foundation focuses on providing financial and resource assistance to individuals with bleeding disorders in the region. It works to foster a supportive environment where those affected can access necessary resources and advocacy.

EIN

The organization's Employer Identification Number (EIN) is 27-2555684.

[1] https://www.hfuny.org [2] https://hemophiliany.com [3] https://www.nysbd.org/patient-organizations [4] https://www.bdaneny.org [5] https://www.guidestar.org/profile/27-2555684