M-CM NETWORK
Improving the lives of individuals with macrocephaly-capillary malformation syndrome. M-CM is caused by mosaic PIK3CA mutations. Tweets by @_chrisco Macrocephaly-capillary malformation syndrome (M-CM, MCAP, M-CMTC) research and information The M-CM Network promotes knowledge, awareness and patient-centered research about macrocephaly-capillary malformation (M-CM) syndrome to improve the lives of patients and their families. M-CM is a rare genetic syndrome causing irregular growth. Common characteristics are brain overgrowth, low muscle tone, developmental disabilities, vascular birthmarks, and body asymmetry.
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M-CM, MCAP, M-CMTC Syndrome Information and Support Promoting knowledge awareness and patientcentered research about macrocephalycapillary malformation syndrome to improve the lives of patients and their families What is MCM. MCM stands for macrocephalycapillary malformation. It is a rare genetic syndrome that causes irregular growth in parts of the body and the brain. Specific effects and severity vary from person to person but common characteristics are brain overgrowth hypotonia low muscle tone and developmental delays.
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Discussions
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1. What are some effective strategies for raising awareness about macrocephaly-capillary malformation syndrome in local communities and beyond?
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Brooklyn Simmons
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2. How can we foster collaboration among researchers, healthcare professionals, and families affected by M-CM to accelerate patient-centered research and improve treatment options?
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Brooklyn Simmons
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
💚 Grateful for organizations like the M-CM Network that are dedicated to increasing awareness about macrocephaly-capillary malformation syndrome. Together, we can support families and improve lives! #MCMAwareness
Brooklyn Simmons
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🌟 It's inspiring to see the incredible work being done to support patients with M-CM! Every bit of knowledge helps in making a difference. Let's spread the word and stand together! 💪 #FightMCM
Brooklyn Simmons
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