PHEO ALLIANCE
Advocacy, awareness and support for those affected by #pheochromocytoma/ #paraganglioma The mission of the Pheo Para Alliance is to invest in research to accelerate treatments and cures while empowering patients, their families, and medical professionals through advocacy, education and a global community of support.
Founded
2007
4000
Web
pheopara.org
Address
Alexandria
Pheochromocytoma & Paraganglioma - The Pheo Para Alliance Our Team Speakers Bureau Pheochromocytoma Paraganglioma Peer Support Newly Diagnosed Care Kits Clinical Care Guidelines Center of Excellence Program PatientFocused Research International Symposium on Pheo Peer Support 1 on 1 and monthly peer support meetings Center of Excellence Program Find an Experienced Medical Team learn more Pheo Para Educational Video Library help others Pheo Para Alliance NEWS EVENTS keeping you up to date Lacey Koelling Joins PPA Board of Directors Posted on 3rd March 2025 Rare Disease Week Recap Posted on 3rd March 2025 2025 Rare Disease Day Posted on 25th February 2025 Nominate a Phriend for a 2025 Volunteer Award. Posted on 21st February 2025 2025 Volunteer Appreciation Week Posted on 21st February 2025 Education Webinar Series Finding and Working With a Medical Team Posted on 19th February 2025 International Pheo Para Education Conference Posted on 5th February 2025 Announcement. FDA Grants Priority Review to Mercks Application for WELIREGbelzutifan Posted on 28th January 2025 PPA Welcomes New Program Coordinator Posted on 24th January 2025 Monthly Peer Support Meeting Posted on 15th February 2025 6th Annual Awareness Week Kick Off Committee Meeting Posted on 15th January 2025 Tumores Neuroendocrinos Para Pacientes y Cuidadores Posted on 17th December 2024 December Newsletter Posted on 17th December 2024 PPA Releases Patient Guide to Metanephrines Test Posted on 16th December 2024 Education Webinar Series 5th Annual Fireside Chat Posted on 12th December 2024 Learn what is pheo para. Pheo recently diagnosed with pheochromocytoma.
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DalšíDiscussions
Odpovědí v diskuzi
1
1. How can we enhance awareness and understanding of pheochromocytoma and paraganglioma within the broader medical community to improve early diagnosis and treatment?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. What strategies can NGOs employ to foster stronger connections and support among patients diagnosed with pheochromocytoma and paraganglioma, especially in terms of peer support and community engagement?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💜 So grateful for the incredible work the Pheo Para Alliance does! Together, we can raise awareness and support those affected by pheochromocytoma and paraganglioma. Let’s spread the word and bring hope to our community! #PheoParaAlliance #Awareness
Brooklyn Simmons
Product Manager
🌟 Shoutout to everyone involved in the Pheo Para Alliance! Your dedication to providing resources and support for those facing these rare conditions is truly inspiring. Let's continue to lift each other up and fight for a brighter future! #RareDisease #TogetherWeCan
Brooklyn Simmons
Product Manager
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