Naomi has not let her sickle cell disease hold her back from achieving all of her goals! This year, she’ll earn a master’s degree in digital marketing and in her spare time, she enjoys video editing, baking and painting. She wants to guide young people which is why she is excited to participate in our #CHOPCureSickleCell Walk and Family Fun Day presented by West Pharmaceutical Services, Inc. on Saturday, June 7. Support patients like Naomi and register today: http://ms.spr.ly/6183SwdiN. #ForBreakthroughs (fb)

Marina was diagnosed with Junctional Epidermolysis Bullosa (JEB), a rare genetic disease that causes painful skin blistering. For many EB patients, the disease goes beyond the skin to involve other organs. Marina and her family travel from their home in Pittsburgh to see our Epidermolysis Bullosa Multidisciplinary Clinic team. This confident and fashionable 5-year-old is headed to kindergarten and loves dancing, playing soccer and spending time with her family! Learn more about our Epidermolysis Bullosa Multidisciplinary Clinic and the work our team is providing for patients like Marina: http://ms.spr.ly/6183Swe5H. (fb)