ARACHNOID CYST FOUNDATION
The Arachnoid Cyst Foundation's mission is to have "a protocol, that's all" established so that we, the Arachnoidites, do not go into a doctor's office and are told "it's all in your head" ever again. This is a web of information and stories of patients and their struggles in living with an Arachnoid Cysts all over the world. Creste advocatting from working through government agencies to making their Dr understand our unique situation. Find support among others affected by this long term systemic, degenerative, auto immune, Central Nervous System Disease with no known cure, not enough treatment, and little research into the cascading difficulties this "benign" condition evolves. Our goal is to provide and resources. Through these and other efforts, we are buil have worked diligently.
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