NATIONAL BLEEDING DISORDERS FOUNDATION
Dedicated to finding better treatments and cures for inheritable blood disorders and to preventing the complications of these disorders through education. The National Bleeding Disorders Foundation (formerly the National Hemophilia Foundation) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.
Founded
1948
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National Bleeding Disorders Foundation, formerly NHF | NBDF Main navigation Together we improve the lives of people with bleeding disorders. Add Your Voice Community Voices in Research CVR is a communitypowered registry that gathers information through surveys offering researchers a 360degree view of what it is like to live with a bleeding disorder. Open to all persons affected by an inherited bleeding disorder as well as their nonaffected family members parents spouses grandparents and siblings it provides all the opportunity to participate in patientreported outcomes research. Join us at these events TCS NYC Marathon Bleeding Disorders Conference San Francisco Marathon Connect with other families affected by bleeding disorders in your area through NBDFs chapter network.
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NATIONAL BLEEDING DISORDERS FOUNDATION
Evelyn’s life changed at six when she was diagnosed with ITP, a rare bleeding disorder. Running became her outlet, and now her mission. At the TCS NYC Marathon, she’s racing not just for herself, but to fuel research and advocacy that can change lives.
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