
Cure SMA
363320440
1984
Elk Grove Village, IL 60007 USA
curesma.org
CureSMA
cureSMA
322435
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News

Camden was diagnosed with SMA as a newborn. From the very beginning, it has been a difficult journey for him and his parents, filled with challenges they never expected. But through it all, Camden never backed down and always had a smile on his face. Today, at four years old, Camden is thriving—thanks to SMA treatments made possible by past investments in research. But his journey isn’t over, and neither is ours. By donating today during our Nunemaker Family Research Community Challenge, your gift will be DOUBLED—fueling future breakthroughs for Camden and everyone impacted by SMA. Use the link in our bio to make a donation 💜🧡 (fb)

In partnership with Neurology Live, Cure SMA is excited to share the roundtable series "Advances in SMA Treatments: Insights for Neurologists," is now available! In this 6-episode program, experts Diana Bharucha-Goebel, MD, and Bakri Elsheikh, MBBS, FRCP,cover the latest treatment options, updated best practices, and the growing importance of newborn screening and early diagnosis for spinal muscular atrophy (SMA). The series offers neurologists practical insights on integrating new therapies into clinical practice and highlights the essential role of multidisciplinary care in improving outcomes for patients with SMA. View episode 1: https://lnkd.in/e6e4ecjS (fb)

Poslední diskuze
Nearby
56
6800
4.5
Elk Grove Village
About the organization
- 847, G80, G50, H20 -
Cure SMA leads the way to a world where everyone impacted by spinal muscular atrophy is empowered to lead independent successful and fulfilling lives. Our powerful progress includes However our work is not over and we need your support. Quick Links Spinal muscular atrophy SMA is a progressive neurodegenerative disease that affects the motor nerve cells in the spinal cord and impacts the muscles used for activities such as breathing eating crawling and walking. Newly Diagnosed Living with SMA Healthcare Provider Fundraising EventS Donate Advocate Cure SMA is committed to local support.
Specifically Named Diseases Nerve, Muscle, and Bone Diseases Birth Defects, Genetic Diseases Research