Families for HoPE, Inc.
Sharing the HoPE in HoloProsEncephaly Nonprofit org serving families and children diagnosed with holoprosencephaly (HPE) We are here to raise awareness of Holoprosencephaly and provide HoPE to families touched by HPE. Families for HoPE serves the families of infants and children receiving a diagnosis of Holoprosencephaly (HPE), the most common brain malformation in a developing fetus. HPE occurs between days 17-21 of fetal development, and typically ends in early miscarriage. Current studies indicate that only 3% of all fetuses diagnosed with HPE survive to delivery and a vast majority of these infants do not survive past six months of life, so the medical community offers very little hope when delivering this diagnosis to parents.
ICO
204541651
3600
X (Twitter)
336
Address
Indianapolis
Families for HoPE, Inc. View the 2024 Virtual Conference on Holoprosencephaly Have you been told that your unborn baby has holoprosencephaly. If you are pregnant and have received a prenatal diagnosis of holoprosencephaly for your unborn baby we can help. Get HoPE Are you seeking hope. You are not alone and we can connect you with other HPE families through our online support groups and through our ParenttoParent program.
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