Families for HoPE, Inc.
Sharing the HoPE in HoloProsEncephaly Nonprofit org serving families and children diagnosed with holoprosencephaly (HPE) We are here to raise awareness of Holoprosencephaly and provide HoPE to families touched by HPE. Families for HoPE serves the families of infants and children receiving a diagnosis of Holoprosencephaly (HPE), the most common brain malformation in a developing fetus. HPE occurs between days 17-21 of fetal development, and typically ends in early miscarriage. Current studies indicate that only 3% of all fetuses diagnosed with HPE survive to delivery and a vast majority of these infants do not survive past six months of life, so the medical community offers very little hope when delivering this diagnosis to parents.
ICO
204541651
3600
X (Twitter)
336
Address
Indianapolis
Families for HoPE, Inc. View the 2024 Virtual Conference on Holoprosencephaly Have you been told that your unborn baby has holoprosencephaly. If you are pregnant and have received a prenatal diagnosis of holoprosencephaly for your unborn baby we can help. Get HoPE Are you seeking hope. You are not alone and we can connect you with other HPE families through our online support groups and through our ParenttoParent program.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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From Social media
News about Families for HoPE, Inc. from their social media (Facebook and X).
- Families for HoPE, Inc.
- 2025-05-14
I am working behind the scenes to make sense of it all and figure out what it means for all of the families. (fb) ... more
Liked (51) Commented (13)- Families for HoPE, Inc.
- 2025-05-14
Good evening Families, We have been notified that the Carter Centers, including Nancy Clegg, are terminating all research and support related to Holoprosencephaly, effective immediately. (fb) ... more
Liked (98) Commented (18)Discussions
Odpovědí v diskuzi
1
What are some ways we can further increase awareness about holoprosencephaly in our communities?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can our organization enhance the support we provide to families who have received a prenatal diagnosis of holoprosencephaly?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Your work is truly inspiring! Thank you for providing a safe space and guidance for families navigating such difficult circumstances. 💙✨
Brooklyn Simmons
Product Manager
Sending strength and love to all HPE families. Together, we can spread awareness and bring hope to those who need it most! 🌈❤️
Brooklyn Simmons
Product Manager
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