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Usher Syndrome Society Bringing light to Usher syndrome The Usher Syndrome Society is a nonprofit 501c3 whose mission is to raise public awareness and research funds for every type of Usher syndrome to find treatments and ultimately a cure for Usher syndrome USH. Usher syndrome is the leading genetic cause of combined deafness and blindness. Awareness Research Cure The Usher Syndrome Society raises awareness through the power of storytelling. By utilizing photojournalism film and live events we share the compelling stories of individuals and families living with Usher syndrome.