Usher Syndrome Society Inc
A nonprofit that uses arts, educational events, & collaboration to raise awareness for Usher syndrome The Usher Syndrome Society is a non-profit that uses the arts, educational events, and collaboration to raise awareness and funds for treatments and a cure for Usher syndrome.
Founded
2008
2100
Web
ushersyndromesociety.org
Address
Needham
Home - Usher Syndrome Society Usher Syndrome Society Bringing light to Usher syndrome The Usher Syndrome Society is a nonprofit 501c3 whose mission is to raise public awareness and research funds for every type of Usher syndrome to find treatments and ultimately a cure for Usher syndrome USH. Usher syndrome is the leading genetic cause of combined deafness and blindness. Awareness Research Cure The Usher Syndrome Society raises awareness through the power of storytelling. By utilizing photojournalism film and live events we share the compelling stories of individuals and families living with Usher syndrome.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
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From Social media
News about Usher Syndrome Society Inc from their social media (Facebook and X).
- Usher Syndrome Society Inc
- 2025-05-22
We've launched a blog. As part of our efforts to bring greater awareness to Usher syndrome, we’re proud to introduce a new space for storytelling. (fb) ... more
Liked (31) Commented (4)
- Usher Syndrome Society Inc
- 2025-04-29
Research Update: JCyte Trial. The Usher Syndrome Society has proudly supported jCyte's work and closely followed their progress over the years. (fb) ... more
Liked (29) Commented (4)Discussions
Odpovědí v diskuzi
1
How can storytelling through the arts effectively raise awareness and foster understanding of Usher syndrome in communities?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
What role do collaborations with other organizations and researchers play in accelerating advancements in treatment and support for individuals affected by Usher syndrome?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💖 Absolutely inspired by the incredible work the Usher Syndrome Society is doing! Raising awareness through arts and storytelling is such a powerful way to connect with the community. Let's support their mission to bring light to Usher syndrome! 🌟
Brooklyn Simmons
Product Manager
🎨 So proud of the Usher Syndrome Society for using creative avenues to educate and advocate! Every effort counts in finding treatments and a cure. Together, we can make a difference! 💪💙
Brooklyn Simmons
Product Manager
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