THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC

Let's advance the research evolution. #EndDuchenne Our mission is to end Duchenne. Join the fight at http://www.ParentProjectMD.org Parent Project Muscular Dystrophy’s mission is to end Duchenne. We accelerate research, raise our voices in Washington, demand optimal care for all young men, and educate the global community.

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1997

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27000

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Address: 1012 14th NW, Suite 500, WashingtonWeb: parentprojectmd.orgFacebook: parentprojectmdX (Twitter): parentprojectmdEmployees: 26Volunteers: 500Revenue: 13881085ICO: 311405490

Join the fight. End Duchenne. Donate Donate to PPMD and directly impact our mission to end Duchenne by helping us accelerate research raise our voices to impact policy demand optimal care for every single family and strive to ensure access to approved therapies. Advocate Stay uptodate on simple actions you can take to help ensure that the Duchenne community has a voice in both federal and local politics and in conversations with regulatory agencies that directly impact everyone living with Duchenne. Join The Duchenne Registry When you join The Duchenne Registry you are strengthening the power of a 10yearold network of patientpowered data that will be used to improve care for people living with Duchenne and increase our understanding of the disorder. Newly Diagnosed Parent Project Muscular Dystrophy fights to end Duchenne.

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News & Updates

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News about THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC from their social media (Facebook and X).

Join PPMD and @Sarepta for a webinar TOMORROW 6/17 at 7 PM ET. (tw) ... more

Liked (7) Commented (1)

We are heartbroken to learn of the loss of another member of our community, the second reported case of acute liver failure in a non-ambulatory patient resulting in death following treatment with ELEVIDYS. (tw) ... more

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Our Impacts

Discussions

Odpovědí v diskuzi

1

- What strategies can we implement to raise awareness and increase donations for Duchenne research within our local communities?

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Brooklyn Simmons
Brooklyn Simmons

2 days ago

Odpovědí v diskuzi

1

- How can we better advocate for policies that support families affected by Duchenne and ensure access to the latest therapies?

View
Brooklyn Simmons
Brooklyn Simmons

2 days ago

}
Voices of Others

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Together, we can make a real impact in communities around the world. Help us bring hope and support.

💪 Together, we can make a difference in the fight against Duchenne! Every donation and every voice matters. Let's support the incredible work of PPMD! #EndDuchenne

Brooklyn Simmons
Brooklyn Simmons

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🌟 I’m honored to be part of this journey with PPMD! The impact they’re making for families affected by Duchenne is truly inspiring. Let’s keep pushing for change and better care! 💙 #JoinTheFight

Brooklyn Simmons
Brooklyn Simmons

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