Ten years ago, the Duchenne community gained a vital tool for the clinical management of adrenal insufficiency and steroid stress dosing for individuals on long-term corticosteroid therapies: the PJ Nicholoff Steroid Protocol for Healthcare Providers. We’re now marking the 10th anniversary of PJ’s Protocol by honoring the legacy of PJ Nicholoff and the relentless advocacy of his family with an updated protocol. The newly revised resource is an even more comprehensive version of the original protocol that incorporates a decade of learning, collaboration, and feedback from families and clinicians alike. PPMD and the Nicholoff family hopes this next chapter of PJ’s Protocol continues to educate, advocate, and support the Duchenne community. “PJ’s legacy goes on. This won’t happen again. And the healthcare profession is educated. So it’s a win, win, win.” - Brian Nicholoff, PJ’s father (fb)

It is not easy to enter the world of #Duchenne and #Becker, but you are not alone. PPMD is here to help guide you from diagnosis onward and provide you with whatever support you need. The Newly Diagnosed support program at PPMD’s 2025 Annual Conference will feature specialized sessions and a dedicated social meet and greet for families who have received a Duchenne/Becker diagnosis after January 2021. New to the Duchenne and Becker community? We hope to see you there! #PPMD2025 https://web.cvent.com/event/ed1287ea-84b0-431c-ae98-ca0f0479d905/websitePage:fb02d352-7f95-4409-9e28-86315bebfd67 (fb)