The Focus Foundation, Inc.

The Focus Foundation, Inc. is a United States-based nonprofit organization dedicated to supporting children and families affected by X and Y chromosomal variations, as well as associated conditions such as dyslexia and dyspraxia. Founded to promote awareness, early diagnosis, and syndrome-specific treatment, the foundation aims to help children with these rare genetic disorders reach their full potential through optimized care and educational support.

History and Mission

Established over 15 years ago through the collaboration of Jacolyn Bucksbaum and Dr. Carole Samango-Sprouse, The Focus Foundation was created to address the underdiagnosis and treatment gaps in children with X and Y chromosomal variations. Dr. Samango-Sprouse, a neurodevelopmentalist and clinical professor with extensive expertise in rare genetic disorders, serves as the Executive Director and Chief Science Officer. The foundation focuses on improving the developmental outcomes of affected children by providing resources for parents, educators, and healthcare professionals. It also promotes research and public education efforts to enhance understanding and management of these conditions.

Programs and Activities

The Focus Foundation undertakes a range of activities including scientific research, educational initiatives, and community outreach. It assembles a dedicated team of scientists, educators, healthcare providers, and volunteers to support children with developmental dyspraxia and dyslexia related to chromosomal variations. By raising awareness and funds, the foundation seeks to reduce school failure, behavioral issues, and low self-esteem commonly experienced by untreated children with these disorders.

Organization and Classification

The Focus Foundation is classified as a 501(c)(3) nonprofit organization focused on medical research, specifically targeting rare diseases and genetic conditions. Contributions to the foundation are tax-deductible, supporting its ongoing work in scientific study and advocacy.

Overall, The Focus Foundation plays a vital role in enhancing the quality of life and developmental prospects for children with X and Y chromosomal variations through research, education, and comprehensive support.

Note: This article is based on information available as of 2025 and draws primarily on data from nonprofit databases and organizational histories.

[1] https://www.focusnonprofit.org [2] https://rarediseases.org/organizations/focus-foundation-inc/ [3] https://thefocusfoundation.org/our-history/ [4] https://www.charitynavigator.org/ein/342045354 [5] https://projects.propublica.org/nonprofits/organizations/342045354