BEYOND BATTEN DISEASE FOUNDATION

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Mission: eradicate Batten disease. Batten disease is a fatal neurodegenerative disorder that takes away childhood, and then takes away. Beyond Batten Disease Foundation was established to eradicate juvenile Batten disease by raising awareness and funds to accelerate research for a treatment or cure.

Founded

2008

Facebook

3900

X (Twitter)

870

Address

Austin

Address: 3305 Steck Ave Ste 200, AustinWeb: Sign in to see organisation websiteFacebook: BeyondBattenX (Twitter): beyondbattenVolunteers: 400Revenue: 1028636ICO: 263223661

Beyond Batten Disease Foundation Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year. Toggle menu About the Foundation Funds BBDFs Role and Impact Contact Us Beyond Batten Disease Foundation 3305 Steck Ave. Suite 200Austin TX 78757Phone 512. 275.

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George

1. What innovative fundraising strategies have other NGOs used effectively to support research in rare diseases like Batten disease?

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BEYOND BATTEN DISEASE FOUNDATION

#ICYMI — New data shows promising results for Batten-1, with real-world evidence supporting its impact on preserving vision in CLN3 patients. Don’t miss this important update on the progress being made in the fight against Batten disease. Read more: .

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Rachel

2. How can we engage more communities in awareness campaigns about Batten disease and similar rare genetic disorders?

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Victor

❤️ Thank you, Beyond Batten Disease Foundation, for your relentless dedication to finding a cure! Together, we can bring hope to families affected by this devastating disease. #EndBattenDisease

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Sylvia

💚 Every step we take brings us closer to a world without Batten disease! Let's unite our efforts and support this crucial mission. Together, we can make a difference! #BattenAwareness #CureHope

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