
Team Telomere
An international community for telomere biology disorders. Facebook: https://t.co/tSo9D8CRne | Instagram: TeamTelomere | Email: info@teamtelomere.org Supporting families worldwide affected by Dyskeratosis Congenita and Telomere Biology Disorders. The mission of Team Telomere is to empower individuals worldwide impacted by Telomere Biology Disorders with information and support services, to advance improved diagnosis through education and advocacy, and to accelerate the medical and scientific communitys research in finding causes, effective treatments, and a path towards a cure.

Founded
2009
2100
X (Twitter)
2148
Address
Coeur d'Alene
Team Telomere | A Community for Telomere Biology Disorders A Community for Telomere Biology Disorders Community Research Resources Our Mission Vision The mission of Team Telomere is to provide information and support services to families worldwide affected by Dyskeratosis Congenita and Telomere Biology Disorders to encourage the medical communitys research in finding causes and effective treatments and to facilitate improved diagnosis by educating medical providers. The vision of Team Telomere is to see a world where every person impacted by Telomere Biology Disorders including the affected individuals caregivers researchers and clinicians has accessible care community and resources with the goal of positively changing the course of this disease driving toward improved treatments and ultimately one day a cure. What Are Telomere Biology Disorders. Watch our informational video explaining Telomere Biology Disorders and their impact on the body.
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News about from their social media (Facebook and X).

Join us for Team Telomere’s fifth annual gala celebration of the Telomere Biology Disorder community: Cocktails & Chromosomes - Minnesota. ✨ Mayo Civic Center | Rochester, MN ✨ October 18, 2025, 6:00 - 10:00 PM Each of our galas has its own unique spin and focus, and this evening promises to be unforgettable - celebrating the advancements and accomplishments of all parts of our community from impacted individuals, to families, advocates, clinicians, and researchers. Tickets are open.
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Alliance/Advocacy Organizations Category
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Fund Raising and/or Fund Distribution Category
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Go4theGoal Foundation is a public, non-profit charitable foundation whose funds are used to provide supportive services to children with cancer.

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Cross country cycling tours to raise awareness and funds for MS research and volunteer for patients.

100. Dementia Alliance of North Carolina
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Isles' mission is to foster self-reliant families and healthy, sustainable communities.
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