Amyloidosis Support Network, Inc.

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Supporting #amyloidosis patients and families while promoting research, education and awareness. 248.922.9610 #AmyloidosisAwareness https://t.co/iNU2rqE6yw This is the Official Facebook page for The Amyloidosis Foundation. Amyloidosis is a rare blood disorder. It is estimated that only 8 in 1,000,000 people develop this disease and has "orphan disease" status with NIH. The amyloidosis support network is committed to increasing the rate of early detection of amyloidosis thereby improving survivability and quality of life. Our core mission is to increase physician awareness. We also provide patient education materials, advocacy and support resources. Lastly we promote support high-value research projects. We intend to sponsor programs and services, anywhere in the world, through the leadership of our knowledgeable and dedicated volunteers.

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Home | Amyloidosis Foundation Mobile Menu Main navigation Search Secondary Menu 7151 N. Main St. Ste. 2 Clarkston MI 48346 2489229610 ALAMYLOIDOSIS 2025 Winter Newsletter Amyloidosis Awareness Items Watch Now HereditaryAmyloidosis The Amyloidosis Channel Patient Education Activity The ABCs of Amyloidosis The Journey From Diagnosis to Treatment Read more here Featured Patient Story Patricia Devine Latest News Story Headlines By Scripps Research Institute Mackenzie N.

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Victor

🌟 Grateful for organizations like the Amyloidosis Foundation that are dedicated to educating and advocating for patients and families. Every voice matters in the fight against amyloidosis! 💪 #SupportAndAwareness

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Amyloidosis Support Network, Inc.

How familiar are you with AL amyloidosis symptoms. Although not every patient has the same symptomology, some are most common. Check out the facts here ⬇️ https://amyloidosis.

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Matthew

- How can patient stories, like that of Patricia Devine, be leveraged to foster a stronger support network for those affected by amyloidosis?

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Adam

💜 Proud to support the Amyloidosis Support Network! Together, we can raise awareness and help those affected by this rare disease. Let's spread the knowledge! #AmyloidosisAwareness

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Amyloidosis Support Network, Inc.

⭐Next Webinar Session TOMORROW, Wednesday, June 25, 2025 at 06:00 PM - 07:00 PM Eastern Time Zone⭐ Choosing Your “Identity” and How It Impacts the Amyloidosis Experience Identity plays a significant role in the experience of living with amyloidosis. Your identity encompasses aspects such as your self-perception, beliefs, values, and the roles you fulfill in various areas of your life. How you understand and define your identity can greatly influence how you navigate the challenges and changes brought about by amyloidosis.

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Catherine

- What are some effective strategies for increasing awareness about amyloidosis in communities that are currently unfamiliar with the condition?

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