Osteogenesis Imperfecta Foundation, Inc.
Osteogenesis Imperfecta (OI) is a genetic bone disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.” Improving quality of life for those living with OI through research, education, awareness & support. Osteogenesis Imperfecta (OI) is a genetic bone disorder characterized by fragile bones that break easily. An individual is born with OI and affected throughout his or her life. Compared to healthy bone, the bones of a child or adult with OI are like chalk. Someone with mild OI may experience a few fractures while those with the severe forms may have hundreds in a lifetime. Each broken bone hurts as much as the first! The mission of the Osteogenesis Imperfecta Foundation is to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support. Each year, the Foundation serves thousands of people and provides almost $1 million in funding to deserving programs and scientists.
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The Osteogenesis Imperfecta Foundation | Research, Education, Awareness, Support Our mission is to improve the lives of those living with osteogenesis imperfecta through research education awareness and mutual support. The Osteogenesis Imperfecta Foundation Inc. OI Foundation is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. Research Education Awareness Mutual Support The OI Foundation is Here for You Programs and resources of the OIF help individuals and medical professionals understand osteogenesis imperfecta.
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Osteogenesis Imperfecta Foundation, Inc.
The October issue of the OIF E-Newsletter is here. Read about the recent Physical Therapy, Exercise, and OI session recording, OIF Regional Conference: Portland, OR, an update from Ultragenyx, OI research updates, and upcoming events. Read this issue at https://mailchi.
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Osteogenesis Imperfecta Foundation, Inc.
Thank you to everyone who attended the OIF Regional Conference in Portland, OR this past weekend. This one-day event included sessions and discussions on understanding and living with osteogenesis imperfecta and welcomed many new faces to our community, with over 70 people in attendance.
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