Rett Syndrome Research Trust, Inc.

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Fighting to cure Rett Syndrome and MECP2 related disorders. RSRT's mission is to spur and support research that is leading to a cure for Rett Syndrome and related MECP2 disorders. Rett is a devastating disorder that afflicts 350,000 children and adults around the world. It robs its victims of speech, movement, and hand use and often causes seizures, breathing abnormalities, extreme anxiety, digestive and cardiac problems. Rett is caused by a random mutation on the X chromosome and it afflicts mostly girls and women. In 2020 RSRT launched a new phase of its research called CURE 360. The name reflects the fact that RSRT has Rett surrounded with the most promising approaches that attack the disorder at its genetic core. CURE 360 also ensures that the research incubated at RSRT moves into biopharma, a critical step for advancing to clinical trials.

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2007

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Trumbull

Address: 67 Under Cliff Rd, TrumbullWeb: Sign in to see organisation websiteFacebook: RettSyndromeResearchTrustEmployees: 8Revenue: 8523815ICO: 260687439

Rett Syndrome Research Trust: Advancing the most promising curative strategies for Rett Syndrome So many things about Rett are beyond our control. Accelerating a cure isnt one of them. Sign up for the Registry now to help drive the development of genetic medicines. ParentPowered We are the organization working to cure Rett Syndrome.

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Evelyn

1. What strategies can we implement to effectively engage more families and individuals in the Registry to accelerate the development of treatments for Rett Syndrome?

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Jane

2. How can we better collaborate with Biopharma companies to ensure they understand the unique challenges and potential of developing therapies for MECP2 related disorders?

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Louise

🌟 Together, we can make a difference! Signing up for the Registry is a powerful way to support the fight against Rett Syndrome and bring hope to so many families. Let’s unlock that world of information! 💪❤️

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Evelyn

💚 I’m so inspired by the work being done by Rett Syndrome Research Trust! Every effort counts in accelerating a cure. Let’s rally together and spread the word about CURE 360 and the Registry! #CureRett #ParentPowered

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