Rett Syndrome Research Trust, Inc.
Fighting to cure Rett Syndrome and MECP2 related disorders. RSRT's mission is to spur and support research that is leading to a cure for Rett Syndrome and related MECP2 disorders. Rett is a devastating disorder that afflicts 350,000 children and adults around the world. It robs its victims of speech, movement, and hand use and often causes seizures, breathing abnormalities, extreme anxiety, digestive and cardiac problems. Rett is caused by a random mutation on the X chromosome and it afflicts mostly girls and women. In 2020 RSRT launched a new phase of its research called CURE 360. The name reflects the fact that RSRT has Rett surrounded with the most promising approaches that attack the disorder at its genetic core. CURE 360 also ensures that the research incubated at RSRT moves into biopharma, a critical step for advancing to clinical trials.
Founded
2007
30000
Web
rsrt.org
Address
Trumbull
Rett Syndrome Research Trust: Advancing the most promising curative strategies for Rett Syndrome So many things about Rett are beyond our control. Accelerating a cure isnt one of them. Sign up for the Registry now to help drive the development of genetic medicines. ParentPowered We are the organization working to cure Rett Syndrome.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Similar organisations
Ella Foard Foundation for Rett Syndrome
The Ella Foard Foundation for Rett Syndrome was founded by family and friends to champion a cause to find a cure for Rett Syndrome.
International Rett Syndrome Association, Inc.
IRSF's vision is to create a world without Rett syndrome.
We are a 501(c)(3) non-profit dedicated to getting treatments developed for Cockayne Syndrome.
International Rett Syndrome Foundation
IRSF's vision is to create a world without Rett syndrome.
Similar Organisations Worldwide
ONTARIO RETT SYNDROME ASSOCIATION (ca)
ORSA Canada is a volunteer, non-profit charity for parents, caregivers, researchers and medial professionals.
Genetic Cures For Kids Inc (au)
Please help save Tallulah Moon and all kids living with SPG56.
Working with anyone affected by Rett syndrome throughout their lives.
Rett Syndrome Association Of Australia Incorporated (au)
The Rett Syndrome Association of Australia Inc.
Accelerating treatment for Rett syndrome.
More from Trumbull
Spiritist Society of Bridgeport Inc
SER is a non-profit educational organization focused on the study of Spiritism through Allan Kardec’s works.
Similar social media (30000)
We love to design & code premium WordPress themes for blog, news, and magazine websites.
Rochester Philharmonic Orchestra, Inc.
The heartbeat of Rochester since 1922 rpo.
Jewish Book Council promotes the reading, writing and publishing of quality Jewish content books.
San Jose Downtown Property Owners Association
We make downtown San Jose a better place for business, residents and visitors through events, advocacy and more.
Friends-International works with marginalised urban children and youth, their families and communities, to help them become independent and productive citizens of their country.
Category
Deborah is NJ's preeminent specialty heart hospital, nationally renowned for its outstanding care.
SAVE, A Friend to Homeless Animals is a 501(c)(3) non-profit animal shelter dedicated to protecting the health and wellfare of homeless companion animals in the Greater Princeton area.
From Social media
News about Rett Syndrome Research Trust, Inc. from their social media (Facebook and X).
- Rett Syndrome Research Trust, Inc.
- 2025-08-06
Your child’s story is unique. The more families enrolled in the Global Registry = the more accurate and powerful the data is. (fb) ... more
Liked (29) Commented (7)- Rett Syndrome Research Trust, Inc.
- 2025-08-04
Monica breaks down three common fundraising myths — and reminds us there’s always a way to get involved that fits you. (fb) ... more
Liked (22) Commented (0)Discussions
Odpovědí v diskuzi
1
1. What strategies can we implement to effectively engage more families and individuals in the Registry to accelerate the development of treatments for Rett Syndrome?
View
Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we better collaborate with Biopharma companies to ensure they understand the unique challenges and potential of developing therapies for MECP2 related disorders?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
🌟 Together, we can make a difference! Signing up for the Registry is a powerful way to support the fight against Rett Syndrome and bring hope to so many families. Let’s unlock that world of information! 💪❤️
Brooklyn Simmons
Product Manager
💚 I’m so inspired by the work being done by Rett Syndrome Research Trust! Every effort counts in accelerating a cure. Let’s rally together and spread the word about CURE 360 and the Registry! #CureRett #ParentPowered
Brooklyn Simmons
Product Manager
Share your comment / review / opinion
Kendall Monroe
Product Manager
Join us and make a difference for the future!
Great for discovering hidden-gem organizations near me.
Brooklyn Simmons
Product Manager
Eduo connects you to causes that actually matter to you.
Kendall Monroe
Product Manager
Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.
Madison Carter
Product Manager
What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda — just provides tools for people to explore and support what matters to them.
Riley Bennett
Product Manager
Clean, community-driven, and full of heart — love it.
Sydney Parker
Product Manager
I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.
Jordan Blake
Product Manager
Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.
Brooklyn Simmons
Product Manager
Transparent, useful, and beautifully designed.
Kendall Monroe
Product Manager
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with Google