Firefly Fund
A nonprofit that provides crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children. We fund research and education to accelerate cures for rare genetic diseases that affect children.
ICO
263253844
1900
X (Twitter)
242
Address
Philadelphia
Shining a Light on Rare Disease - Firefly Fund Shining a Light on Rare Disease Our mission is to fund and support research and education necessary to accelerate cures for rare neurodegenerative genetic diseases that affect children and currently have no cure. Firefly Fund UT Dell Medical School Over 30 million Americans are estimated to be living with a rare disease There are over 7000 known rare diseases Receiving a rare disease diagnosis can be a multiyear medical odyssey Watch our new video capturing the spirit of our mission inspired by rare disease parents racing to find medicine to save their children who in the process wereRead More Your donations fund crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children and currently have no cure. Matthew McConaughey shares a note on the Firefly Fund a nonprofit organization based in Austin TX. Our mission is to fund and support the research and education necessary to accelerateRead More Our Lived Experience Parents Pam and Chris Andrews noticed their eldest daughter Belle was showing developmental delays in gross and fine motor skills and coupled with other concerns they had such as a swollen spleen and low platelets the parents and their young daughter began a multiyear diagnostic odyssey that spanned over a dozen therapists and medical specialists.
From Social media
News about from their social media (Facebook and X).
Firefly Fund
✨September is Newborn Screening Awareness Month, a month recognizing the vital significance of newborn screening. Through newborn screening, clinicians can identify conditions that can affect a child's long-term health or survival. These screenings help detect rare diseases before symptoms appear, giving families access to care and treatments, sooner.
Like Comment
Data about organisation
Remedial Reading, Reading Encouragement Category
Organisations with similar rank to Firefly Fund in category Remedial Reading, Reading Encouragement
123. INFINITE SCHOLARS PROGRAM OF MISSOURI
"The Possibilities are Infinite" .
We are a non-profit agency dedicated to high-quality, neighborhood-based literacy education that impr.
We fund research and education to accelerate cures for rare genetic diseases that affect children.
126. Childrens Education Foundation-Vietnam
Children's Education Foundation - Vietnam works to break the poverty cycle by helping girls from impo.
Through one-on-one tutoring, STAIR empowers students with the tools to read better and dream bigger, because every child deserves to read on grade level.
Philadelphia
Organisations from Firefly Fund
756. UNIVERSAL AUDENRIED CHARTER SCHOOL
Welcome to Universal Companies.
757. Pennsylvanians for Modern Courts
"Like" us and join in the fight for court reform in Pennsylvania.
We fund research and education to accelerate cures for rare genetic diseases that affect children.
Transforming Access to Sexual and Reproductive Health.
Similar organisations
Similar organisations to Firefly Fund based on mission, location, activites.
Mercier Literacy Program Forchildren Inc
Children succeed in school and life.
Our mission is to engage all children in the support they need to succeed.
We deliver the healing power of play to children with medical needs through dedicated volunteers.
Similar Organisations Worldwide
Organisations in the world similar to Firefly Fund.
Flicker of Hope Foundation Ltd (au)
The Flicker of Hope Foundation raises funds for Neurofibromatosis medical research.
Genetic Cures For Kids Inc (au)
Please help save Tallulah Moon and all kids living with SPG56.
FIREFLY - PHYSICAL, EMOTIONAL, DEVELOPMENTAL AND COMMUNITY SERVICES (ca)
FIREFLY is a regional organization in Northwestern Ontario servicing Kenora, Dryden, Red Lake, Atikokan, Fort Frances, Sioux Lookout & Northern Communities.
The Luminesce Alliance is a world-leading paediatric research co-operative, established to harness the strengths of its partner organisations to unlock future prevention, treatments and ultimately, cures, for childhood illnesses.
Interesting nearby
Interesting organisations close by to residence of Firefly Fund
The Philly Book Bank believes every child deserves to read.
We fund research and education to accelerate cures for rare genetic diseases that affect children.
Children's Literacy Initiative
We are an organization passionately working with educators .
Tree House Books is growing & sustaining a community of readers, writers, and thinkers in Philadelphia, PA.
Similar social media (2142)
Organisations with similar social media impact to Firefly Fund
At the Ipswich Museum, 400 years of history surround you at every turn.
The Wyoming Free Library has been a source of information and learning since 1927.
We fund research and education to accelerate cures for rare genetic diseases that affect children.
122354. Lockport Public Arts Council Inc
ARTS & CULTURAL CENTER: Galleries | Arts & Culture Education Center | 40+ Artists Studio Spaces |.
122355. Riverbend Community Mental Health Inc
Our Mission is to care for the behavioral health of our community.
Join us and make a difference for the future!
I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.
Daniel
Eduo.org makes finding trustworthy nonprofits refreshingly simple.
Jessica
Finally, a clear and organized way to explore local and global charities.
Joanna
Like Wikipedia for nonprofits — but even more inspiring.
Stacy
Eduo.org makes finding trustworthy nonprofits refreshingly simple.
Barbara
I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.
Daniel
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Simone
2025-10-28
"Thrilled to hear that Jackie Merlos, a mother from Portland, has been released from immigration detention after 4 long months! 🙌 Her reunion with her children is a testament to the power of community support and advocacy. ❤️ #GoodNews #FamilyReunion #CommunitySolidarity"
Portland mother detained at Canadian border released after 4 months in immigration detention
Oregon Live
Like Comment
