Victor

So grateful for the dedication and support from the LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC! Together, we can raise awareness and make a difference for those affected by complex lymphatic anomalies. 💙 #RareDiseaseDay #SupportTheCause

Simone

- What innovative fundraising strategies have proven effective in raising awareness and resources for patients with complex lymphatic anomalies, and how can we implement them in our advocacy efforts?

LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC

🌍 Today is International Day of Charity – a day to celebrate the power of giving. 💛 Originally a Hungarian civil society initiative to honor Mother Teresa on the anniversary of her passing, September 5 became a worldwide platform for charitable action when the UN declared it an international holiday in 2012. Mother Teresa’s legacy reminds us that even small acts of charity can make a lasting impact, alleviating suffering and creating more inclusive, resilient communities.

Detail

LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC

💙 Sixteen-year-old Emiliano, a 16 year old, from Guatemala was first thought to have a simple fracture after a karate injury. But when further tests revealed his bone was unusually thin, he was eventually diagnosed with Gorham-Stout disease (GSD)—a rare condition that weakens bones. After surgery and physical therapy, Emiliano recently started sirolimus treatment and is bravely adjusting to the side effects.

Detail

Clara

- How can we leverage social media and online platforms to educate the public about lymphangio-matosis and Gorham's disease, and the importance of supporting research for these rare conditions?

Renee

It's inspiring to see how this community brings hope and healing to patients and families facing these challenges. Let’s continue to spread awareness and advocate for the research that is so desperately needed! 🌟 #TogetherForChange #CLAsMatter