LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC
Patient-driven solutions for complex lymphatic anomalies: GLA, GSD, KLA, CCLA • Support-Research-Education • Somatic mutations PIK3/mTor & RAS/MAPK pathways Patient advocacy group dedicated to patient driven solutions for complex lymphatic anomalies We connect patients and families to peers and networks of care, partner to advance new research, and educate the medical community to help all people navigating complex lymphatic anomalies have hope for a healthier tomorrow.
Founded
2007
2600
X (Twitter)
296
Address
Saint Petersburg
Complex Lymphatic Anomalies Learn more February 28 LOIs due March 21 2025 Get familiar with the CLA Community LGDA ensurespatients with complex lymphatic anomalies CLAs have the comprehensive support they need from peer medical and scientific communities to lead longer higherquality lives. Learn more and get involved. Patients and families can access resources services and support. Take a look.
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LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC
💙 Sixteen-year-old Emiliano, a 16 year old, from Guatemala was first thought to have a simple fracture after a karate injury. But when further tests revealed his bone was unusually thin, he was eventually diagnosed with Gorham-Stout disease (GSD)—a rare condition that weakens bones. After surgery and physical therapy, Emiliano recently started sirolimus treatment and is bravely adjusting to the side effects.
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LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC
🌍 Today is International Day of Charity – a day to celebrate the power of giving. 💛 Originally a Hungarian civil society initiative to honor Mother Teresa on the anniversary of her passing, September 5 became a worldwide platform for charitable action when the UN declared it an international holiday in 2012. Mother Teresa’s legacy reminds us that even small acts of charity can make a lasting impact, alleviating suffering and creating more inclusive, resilient communities.
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Good News
Victor
2025-10-24
🐾💖 Before the Day of the Dead, families in Philadelphia are honoring their beloved pets by creating beautiful 'pet ofrendas'! It's a heartfelt way to celebrate the everlasting bond and welcome their furry friends back home. Let's cherish our pets and the memories they leave behind! 🐶🐱 #PetOfrendas #Love #GoodNews
Before the Day of the Dead, a time to welcome departed dogs and cats as families create 'pet ofrendas'
ArcaMax
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