LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC
Patient-driven solutions for complex lymphatic anomalies: GLA, GSD, KLA, CCLA • Support-Research-Education • Somatic mutations PIK3/mTor & RAS/MAPK pathways Patient advocacy group dedicated to patient driven solutions for complex lymphatic anomalies We connect patients and families to peers and networks of care, partner to advance new research, and educate the medical community to help all people navigating complex lymphatic anomalies have hope for a healthier tomorrow.
Founded
2007
2600
X (Twitter)
296
Address
Saint Petersburg
Complex Lymphatic Anomalies Learn more February 28 LOIs due March 21 2025 Get familiar with the CLA Community LGDA ensurespatients with complex lymphatic anomalies CLAs have the comprehensive support they need from peer medical and scientific communities to lead longer higherquality lives. Learn more and get involved. Patients and families can access resources services and support. Take a look.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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Liked (5) Commented (0)Discussions
Odpovědí v diskuzi
1
- What innovative fundraising strategies have proven effective in raising awareness and resources for patients with complex lymphatic anomalies, and how can we implement them in our advocacy efforts?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
- How can we leverage social media and online platforms to educate the public about lymphangio-matosis and Gorham's disease, and the importance of supporting research for these rare conditions?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So grateful for the dedication and support from the LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC! Together, we can raise awareness and make a difference for those affected by complex lymphatic anomalies. 💙 #RareDiseaseDay #SupportTheCause
Brooklyn Simmons
Product Manager
It's inspiring to see how this community brings hope and healing to patients and families facing these challenges. Let’s continue to spread awareness and advocate for the research that is so desperately needed! 🌟 #TogetherForChange #CLAsMatter
Brooklyn Simmons
Product Manager
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