
The Paisley Foundation
331321225
Atlanta, GA 30307 USA
thepaisleyfoundation.org
Podobné organizace
Podobné organizace global
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Nearby
4.5
Atlanta
About the organization
- 404, T31 -
Raise Awareness of Thanatophoric Dysplasia Financially Support Clinical Research and Provide Financial Assistance and Community Resources to Affected Families Building a Community to Support TD Families The foundations purpose is to raise awareness of Thanatophoric Dysplasia TD financially assist families both in their everyday lives and where insurancesocial programs fall short and to be a community resource for families present and future whose children have TD. Paisley Renee Courson whom the foundation is named after and honors was a survivor of TD who lived a beautiful 3 years. It is our hope that her story and that of other TD children and families will shine a bright light on this rare condition and inspire not only those affected by TD but all people. Thanatophoric Dysplasia as defined by the Cleveland Clinic is a rare lifethreatening genetic condition that affects the growth and development of a fetus bones and lungs.
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