The Paisley Foundation Inc

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Raise awareness of Thanatophoric Dysplasia, financially support clinical research, and provide financial assistance and community resources to affected families

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331321225

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Address: 1270 Caroline St. Ste D120 PMB 326, AtlantaWeb: Sign in to see organisation websiteICO: 331321225

The Paisley Foundation Raise Awareness of Thanatophoric Dysplasia Financially Support Clinical Research and Provide Financial Assistance and Community Resources to Affected Families Building a Community to Support TD Families The foundations purpose is to raise awareness of Thanatophoric Dysplasia TD financially assist families both in their everyday lives and where insurancesocial programs fall short and to be a community resource for families present and future whose children have TD. Paisley Renee Courson whom the foundation is named after and honors was a survivor of TD who lived a beautiful 3 years. It is our hope that her story and that of other TD children and families will shine a bright light on this rare condition and inspire not only those affected by TD but all people. Thanatophoric Dysplasia as defined by the Cleveland Clinic is a rare lifethreatening genetic condition that affects the growth and development of a fetus bones and lungs.

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Christine

💜 I'm so inspired by the work the Paisley Foundation is doing to support families affected by Thanatophoric Dysplasia. Let’s spread the word and continue to honor Paisley Renee Courson's beautiful legacy! #TDawareness

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Margaret

🙌 It's heartwarming to see such dedication towards raising awareness and providing resources for TD families. Together, we can make a difference and offer hope to those who need it most. 💪 #SupportTDFamilies

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Jill

2. How can we create a more supportive network for families affected by Thanatophoric Dysplasia to share experiences and resources effectively?

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Emil

1. What strategies can the Paisley Foundation implement to increase awareness and understanding of Thanatophoric Dysplasia within both medical communities and the general public?

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Atlanta

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