RASOPATHIES NETWORK USA
The RASopathies Network
A 501c3 organization; Our mission is to advance research of the #RASopathies by bringing stakeholders together. #rarediseases @rasnet.bsky.social 501.c.3 organization; to advance research of RASopathies by bringing together families & researchers
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Legal name of organization: RASOPATHIES NETWORK USA
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Statement on the impact of NIH policy changes for the RASopathies community What Are the RASopathies. 11000. Individually each of the RASopathies is rare Together they come close to 11000 Syndromes Clinics Meetings Scientific Meetings Research Publications Resources Latest News Events Headlines Approval Announcement The FDA has approved a second MEK inhibitor developed by SpringWorks Therapeutics for the treatment of plexiform neurofibroma Reading List Impact of MEK Inhibition on Childhood RASopathyAssociated Hypertrophic Cardiomyopathy Wolf C Zenker M Boleti O. et al.
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