A 501c3 organization; Our mission is to advance research of the #RASopathies by bringing stakeholders together. #rarediseases @rasnet.bsky.social 501.c.3 organization; to advance research of RASopathies by bringing together families & researchers Our mission is to advance research to improve the quality of life for RASopathies families by bringing together families, clinicians and scientists. RASopathies are a group of genetic syndromes that are as common as 1:1000. The RASopathy syndromes include: cardio-facio-cutaneous (CFC), Costello (CS), LEOPARD/NSML, Neurofibromatosis type 1 (NF1), Noonan (NS) and Legius (LS). RASopathiesNet is the product of RASopathies Network USA, a 501c3 Non-Profit, and RASopathies Network UK.