
Fibrous Dysplasia Foundation, Inc.
20715210
2004
Bethesda, MD 20816 USA
fdmasalliance.org
fibrousdysplasia
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News

FD/MAS Alliance is a place for key stakeholders to come together and collaborate. That means researchers, clinicians, families, and people diagnosed with #fibrousdysplasia and #McCuneAlbrightsyndrome like @biakaorimi! Advocacy is belief in action---Today we're sharing why Bia takes action and supports FD/MAS Alliance. We're asking you to take action too. A gift at any level means so much to us! www.tinyurl.com/teamfdmas2025 (fb)

Did you know that Dr. Michael Collins recently joined our Board of Directors? ICYMI, Dr. Collins put out his plug for #TeamFDMAS2025 this week: "In the field of rare disease research, an organized patient advocacy group isn’t merely a nice idea—it’s an indispensable investment that directly translates into accelerated development of new therapies and a higher standard of care. Researchers are pushing the boundaries of metabolic bone science, but their efforts will be limited without the urgent and collective support of our community." Let's show up in force! Your donation can make a big impact! www.tinyurl.com/teamFDMAS2025/ (fb)
